Category Archives: Aging

Exquisite Grief

And when she shall die,
Take her and cut her out in little stars,
And she will make the face of heaven so fine
That all the world will be in love with night
And pay no worship to the sun.

William Shakespeare, Romeo and Juliet

And now it’s happened: I’ve lost my mother. She laid down her broken body—soft and comforting still, but no longer up to the task of moving her through the days — and died. She laid down her weary head, the short-circuiting neurons in her brain finally quiet, and slept.

In her own bed, under her lovely floral quilt, she drifted away and left physical concerns behind in the vessel housing them. Her breathing stretched, the silence between each ragged inhalation hung with anticipation. Her pounding heart slowed and faded to a quiver, like the fluttering wings of a little bird, until it beat no more. My sister quoted Shakespeare: “To-morrow, and to-morrow, and to-morrow, creeps in this petty pace from day to day.” For Mom, the pace has ceased its forward motion; there are no more tomorrows. And in retrospect, the petty becomes hallowed. “Out, out brief candle! Life’s but a walking shadow . . .”

I knew it was coming, or rather, that she was going. For months, I mourned her absence even in her presence, trying to absorb everything and indelibly imprint her image on my memory. The days, finite and measured, poured like sand through the hourglass as I watched them go. I knew I would lose my mother, but I didn’t know it would bring me to my knees.

I didn’t know how heavy grief could be, that I’d drag myself under its weight from my bed each morning, pulled into motion only by the slipstream of routine. Even then, fatigue would leave me to endure the hours until I could curl up again, alone. I didn’t know the world would be too loud and too bright and too fast, its audacity for going on as if the cosmos hadn’t shifted unforgivable. I didn’t know I’d hide from my neighbors or seek solace nightly in wine or toss and turn restlessly in my sleep, dreaming of something just out of my grasp. I didn’t know it would feel like depression.

I didn’t know it would hit this hard, losing my 71-year-old mother to multiple sclerosis. I didn’t think I was entitled to the same bereavement as my friend who lost her 21-year-old son, full of potential, to a heroine overdose; or my friend, whose 5-year-old grandson was taken by a brain tumor before his life had even begun; or my sister, whose husband died of kidney cancer when he was 47, leaving a young son fatherless. Because Mom had been ill for decades and because I’d planned for the end of her life, because she’d become increasingly distraught and difficult, because she suffered, because she was at peace and ready, because I believe her death to be merely a transition—for all these reasons I thought my sorrow would be tempered. I know now, it matters not if the death is tragic or abrupt or expected, if the life has been long or interrupted; grief pierces and reverberates through all who have loved and lost.

I didn’t know it would lodge in my body, that I’d tamp down and swallow my emotions. That staying busy would be a coping mechanism. That avoiding reminders and seeking distractions would keep me functionally numb, but one handwritten note could unravel my hold. I didn’t know it would be a physical urge, this need to cry, and when unleashed, the intensity would crash over me in waves, plunging me under and washing me to shore only when the tide went out. I didn’t know I’d be a private mourner, that I’d get through the memorial with only a few tears, but in the dark of night, in my husband’s arms, I’d finally weep unabashedly, like a child.

I didn’t know people could show such tenderness, that when I returned home I’d find my friends had cleaned my house and left plants and flowers and cards and nourishing food. I didn’t know their generosity would humble me profoundly, that every thought and prayer, every gesture, every act of service would soften the pain and blur the edges.

I didn’t know I could miss my sisters so terribly, the airport goodbyes a severing. I didn’t know we would merge into the embodiment of the best of our mother, that separation would feel unnatural, impossible even. I knew the sacred experience of nurturing the exodus of our mother’s spirit from this world would bring us closer; I didn’t know escorting her body under a full moon to the teaching hospital where she would donate her brain for research would be just as holy.

I knew we’d draw comfort from each other, but I didn’t know heaving sobs punctuated by belly laughs could be so cathartic, that the somber ceremony of scattering her ashes at the ocean’s edge on a cold, overcast day could suddenly turn uproariously funny when one sister, attempting a dramatic toss into the wind, tripped and fell into the freezing surf. I didn’t know we would celebrate our mother’s magnificent life with champagne toasts, crying as we sang along to Helen Reddy and Anne Murray and Karen Carpenter.

I knew we were strong women, that working hard was inextricably woven into who she raised us to be. But, I didn’t know we could clean out her apartment in 3½ days, a whole life summarized in the boxes we carted to my sister’s garage. I didn’t know evidence of Mom’s bravery and integrity would manifest in the intimate task of settling her affairs; not only proof of her creative, tenacious resilience—the hallmark of her personality, but also, signs of her mental decline no one could see.

I knew she was loved by many, not only friends, but those to whom she bonded with fierce loyalty, her chosen family. I didn’t know I’d dread the task of calling each one to deliver the news, that the words would stick in my throat. I didn’t know that their lives would also be bereft without her and I’d be compelled to comfort them, even as my own heart was breaking.

I knew the daily texts would stop, that I wouldn’t hear her voice exclaiming, “Hi, honey!” on the other end of the phone, that when she came to visit it was the last time. I didn’t know when I logged into her account and shut off her electricity the sudden realization of its permanence would take my breath away. I didn’t know I’d question if I should have done more and agonize over whether I’d been enough. I didn’t know I’d ache for her forgiveness.

I knew she’d stay close, that we would feel her; I didn’t know she would come to me when I was exhausted and spent, in the dream-like trance of half-sleep, and spread comfort like warmth through my chest, or when I was quiet and contemplative, in a cool breeze, gently caressing my face and answering my question, “Is that you, Mom?”

I didn’t know the previous contentment with my pretty little life would now feel like complacency; that restless whispers would become clamoring discontent, catapulting me into change and insisting I choose a different path. I didn’t know this transformation was not hers alone; it was mine as well. I know now I’ll never be the same, but therein lies the gift: the pain that shattered my carefully crafted day-to-day, leaving me to ponder my purpose and revisit the very meaning of my existence, has allowed me to create the reality I was born to live.

I know now losing my mother hurts like hell; her absence incarnate is like a light gone out and it will be dark for a while. But in the darkness, I awaken. Holding hands with divinity, I glimpse that I, too am divine. My loss is not diminished by this blissful epiphany, and surprisingly, I’m glad. I don’t want its sharpness blunted. I welcome the overflowing experience, brutal one moment and glorious the next. I did not know, I could not know I would cherish my grief, a grief made exquisite because I loved her so. As I love her now. As I will forever more. This I always knew.

Leave a Comment

Filed under Aging, Enlightenment, Family, Grandparents, Gratitude, Grief, Letting Go, Loss, Memories, Motherhood, Sisterhood

Eulogy To My Mother

When she shall die,
Take her and cut her out in little stars,
And she will make the face of heaven so fine
That all the world will be in love with night
And pay no worship to the garish sun.

William Shakespeare

Wallow High School Senior Photo 1961

Patricia Ann Lyman Pullen-Jones, a 1943 New Year’s Eve baby, was from Bozeman, Montana. And Wallow, Oregon. And Monmouth and Salem and Coquille, Oregon. And Fort Collins, Colorado and Fort Meade, Maryland and Davis, California. From Phoenix, Arizona and Thousand Oaks, California, and for a short time, Taos, New Mexico. For the past 17 years, she was from her beloved Portland, Oregon.   She was from moving more times than anyone could count, except perhaps the faithful who, by her side, lifted mattresses and refrigerators and filing cabinets onto U-Hauls trucks. Pat was from making a home wherever she went; from a plethora of house plants suspended in macramé slings, sunflower artwork, ‘Bloom Where You Are Planted’ needlepoint, and The Desiderata with its burned edges, decoupaged onto a scalloped walnut plaque that hung in every living room in every house in every city. She was from a cat on her lap and a book in her hand.

Patsy was inescapably from her family: her mother, Katherine Ivannie Moore; her father, John Williamson Lyman, her big brother, J.W., who died at ten when she was only four years old, from her sister, younger by two years, Katherine Gwen and her baby sister, Doris Jane. She was from small towns and Rainbow Girls, and the newspaper her father owned (and where she worked); from a high-brow, journalistic lineage; from writers, from poets, from intelligence. She was from class.

Patricia was from skipping a grade and attending St. Paul School for Girls in Walla Walla, Washington, and from returning home to Wallowa High School and the friends she’d grown up with. From ballet and piano and theatre and baton-twirling and reporting for the school paper. From sewing her own prom dresses and covering her shoes with satin to match. She was from talent.

She was from marrying her high school sweetheart who called her Trisha, and following him across the country as he became an officer in the army, from putting him through veterinary school. And after 11 years, painful divorce. From single motherhood and singing her babies to sleep and kissing their fevered foreheads. From teaching them responsibility and manners and the names of wildflowers. She was from mama bear and don’t-mess-with-my-kid and you-and-me-against-the-world. From second chances and late-in-life babies who waited until the right time to come.

She was from three marriages and four children; Lisa Charmaine, Stephen Maynard, Heidi Ann and Sarah Elizabeth; from ten grandchildren, Melissa and Jeremy Buehner, Sydney and Haley Kent, Charles, Bronson, Isabella and Joseph Pullen, Gabriel Rabbat and Holden Collins, and one and a half great-grandchildren, Ashton and baby boy (or girl) Buehner yet to born, and with whom she dances now, whispering, “I’m your Grammy.”

Patricia was from tradition. From ham and twice-baked potatoes and peas and cheese on Christmas, from jello molds and casseroles, from lace tablecloths and felt wall-hangings. From putting in the Thanksgiving turkey and going to a movie with her kids while it roasted. She was from knitting needles and spinning her own wool; from handmade slippers and sweaters and hats and gloves. From oral traditions and stories and poetry. From re-finishing furniture and re-wiring electrical circuits and re-building computers. She was from re-cycling before re-cycling was en vogue. From flushing the transmission, replacing the starter, and installing the windshield-wiper motor on her car. From cabinets full of tools; from YouTube tutorials.

She was from Nordstrom style on a Goodwill budget and holding her chin up and pulling herself up by her bootstraps. She was from fortitude and determination and stick-to-it-iveness and elbow grease. She was from mind-your-own-business and what-goes-around-comes-around and create-your-own-reality.

She was from kisses on the lips and hugs that consumed, from frequent I love you’s and a mother’s intuition. From mothering the motherless, filling the void of their need and taking them as her own adopted children. She was from mother-love big enough to extend to her nephew, Njuguna and nieces, Randee and Cierra, acting as fierce protector and advocate, and never letting go. From making sure they stayed safe and connected, that they felt important and most of all, loved.

She was from teaching: her children, her students, her friends, and everyone around her. From standing with those who could not stand on their own. From liberal politics and feeding the hungry and sending money she didn’t have to women in war-torn and developing countries.

Pat was from loving everyone she met, and all those she met, falling head over heels in love with her. From loud, open-mouthed laughs and saying what’s on her mind and not caring what anyone thinks and swearing a blue streak. From cups of ice filled with Jim Beam and Diet Dr. Pepper, with no lid. She was from spills, and spilling over.

She was from classical music and a quiet life and simplifying. She was from tech savvy and Facebook and the internet. And texts made indecipherable by autocorrect. From many connections with many people, in her physical space and in cyber space. From loving the ones around her, and missing the ones who were not.

Pat was from MS, from nerves worn thin and the world too loud, from skin too sensitive and a heart too full, primed for love, and always broken wide open. From a cane that sat in the corner she refused to use. She was from living and dying on her own terms.

Where she was from is clear to anyone who loved her, and she will be missed immeasurably, but now, it’s about where she’s going. A place of light, brilliant and radiant, as vast as the ocean, as tall as the mountains. She’s returned to the ‘one-ness’ as she often said. She’s not left us, she is merely in non-physical form and in her death, in her own transcendence, she brings healing to her family; spontaneous, exhilarating, joyful healing that washes clean the wounds of human experience, leaving only love.

Love of a purity and magnitude beyond words. Love that is larger than we can comprehend. Love that she herself has become, encompassing and holding us in her embrace. We feel her in the breeze across our face. We feel her in the birds that swoop and soar. We feel her in the full moon as she rises over the blue planet. And if we are lucky, we see her in our dreams.

Format from the poem Where I’m From by George Ella Lyons.

The blue planet with her mountains
Now as always be my territory.
The blue planet with her rivers
Now and always be my hunting ground.
The blue planet with her cities
Now and always be my home ground.
The blue planet with all my goals
Now and always be my victory!


The Grandmother of Time, a Woman’s Book of Celebrations, Spells and Sacred Objects by Zsuzsanna E. Budapest

5 Comments

Filed under Aging, Family, Grandparents, Grief, Growing Up, Letting Go, Loss, Memories, Motherhood, Parenting

In Her Image

Sometimes I feel like a motherless child
Sometimes I feel like a motherless child
Sometimes I feel like a motherless child
A long way from home

African-American Spiritual

Katie Lyman
Age 20, circa 1933

I’m going to lose my mother. It’s an inevitability I never used to think about. My grandmother, Katie lost her mother in 1920 when she was only seven years old. She was the second of five children and the oldest daughter. Separated by scarcely more than a year, the first three were born before her parents divorced. Her mother remarried and after a four-year gap, two more babies were born in quick succession. Katie’s stepfather moved the young family from the city to a rural farm in Wyoming when the littlest were two and one and her mother, Loretta, was eight months pregnant.

My Grammy wrote in her memoirs, “I remember snatches of my mother. It seemed she never sat down at the table because she was always waiting on we kids and Papa.” From my 21st century vantage point, I can only imagine how exhausting and laborious this 24-year-old mother’s life was, raising five small children on the prairie, without modern conveniences, while pregnant. Again. Before they were settled in the new homestead, Loretta’s sixth child was stillborn. Flooding prevented the doctor from reaching her, though we can’t know whether it would have made any difference. She became very ill in the days following but managed to send a letter to her mother, Tennie, saying the baby had died but she ‘supposed she’d be all right.’ Without the convenience of modern technology, that letter didn’t arrive until 2 weeks later, and on the same day as a different letter which carried the news that her daughter had died.

In Katie’s words, “. . . [they] took her to town in a spring wagon with a bed made in it. It was the last time I saw her alive. She said, ‘Goodbye kids. I’ll be back in a day or two.’ I had such an empty feeling. I went behind a tree and cried.”

I was 18 when I left home for the first time to attend college and I missed my mother, Patricia, deeply. A vocal music major, I sang with an elite a cappella choir. Every day at 1:00 pm we rehearsed, our voices painting tonal landscapes in which I lost myself. The eight-part harmonies of “Sometimes I Feel Like A Motherless Child,” wrapped around me as the haunting melody, in a minor key, wept with visceral sorrow, expressing the universal loss; a child without its mother. I was reminded of my grandmother and how she was set adrift so young, alone in the world without an anchor to keep her safely harbored. I wondered, what happens to a girl when her mother dies before she’s become a woman herself. How does she know who to become? And who will show her who she already is? A mother shapes her daughter by simply being. Not nature verses nurture; the unfolding lies in both.

There is something profound in the biological connection between a mother and her daughter that transcends the quality of their relationship or the amount of time spent together. The genetic design that serves as a blueprint for the subsequent generation exists despite circumstance. Daughters can sculpt themselves, choosing how they manifest their best potential, but DNA maps their identity; the double helix provides the framework on which they build themselves. We emerge from those who come before us, carrying their pedigree within; there is no escaping our lineage.

At times, I’ll admit, this is the very thing I’ve rejected—the sameness. When face-to-face with the likeness, I balk and break away, accentuating my difference: I am my-SELF, not a copy of my mother and aunts and grandmother. And yet, at other times, I embrace my tribe with pride and solidarity; the familiarity claims me and I cannot deny my own belonging.

My life unfolded with similar patterns to my mother and grandmother. My grandmother was the eldest daughter. My mother was the eldest daughter. I am the eldest daughter. My grandmother had three daughters and one son, and her youngest, a daughter, was born when she was 40. My mother has three daughters and one son. Her youngest was a daughter, born when she was 40. I have three daughters and one son, and my youngest, a daughter, was born when I was 40. And we have more than numbers in common. We come from strong women; pioneer stock with do-it-yourself independence. We come from mental illness and trauma and divorce. We come from creativity, talent and passion, fiery tempers to match. We come from tender hearts and soft bodies and soothing hands.

I am my mother. I am not my mother. I want to be like my mother. I want to be nothing like my mother. All are true. And one truth remains superlative, no matter how old, we need our mothers; as babes and teenagers, as young mothers ourselves, as aging adults. To be nurtured and comforted, to be cherished and reassured; these are needs we do not grow out of. The simple presence of one’s mother on the planet provides the possibility of a light in the darkness. And regardless of conflict or resolution, intimacy or estrangement, issues past or present, in the end, forgiveness clears the space for only love to remain.

When Katie neared the end of her life she said to her daughter, “When I can’t live alone, will you come and get me?” And Patricia–my mother–did.  Instrumental in the sacred metamorphosis, she gently ushering her mother out of the world, just as her mother did, bringing her into the world.

It’s nearing the end of my mother’s life and the loss has already begun; the grief is nudging me, whispering. A mother’s first instinct is to shield her child from pain, but she cannot shield them from the pain of her own death, try as she might. I’m going to lose my mother, and soon, yet I feel the stirrings of my ancestry lending me strength. I sense the circle of grandmothers bringing me peace. Tennie, mother of Loretta; Loretta, mother of Katie; Katie, mother of Patricia; Patricia, mother of Lisa; we are linked, one to the next, and an unspoken knowledge pulses between us: a mother cannot be lost. She is connected to her children forever. Wherever we go, we carry our mothers with us and we are never far from home.

Leave a Comment

Filed under Aging, Family, Growing Up, Letting Go, Motherhood, Parenting

To Believe or Not to Believe

Christmas 1970

“Mom, is Santa real?”

My youngest shouts this over the top of Katy Perry’s “Roar” playing on the radio as I’m dodging traffic on Providence Road, trying to get to gymnastics. I shouldn’t be surprised that questions of this magnitude frequently come from the back seat of the minivan. Questions like, “Why can’t gay people get married?” or, “Are you a Christian, Mom?” or, “What does it mean, ‘I’ve got passion in my pants and I ain’t afraid to show it?’” We spend a large quantity of our time in transit; it makes sense that life lessons are dispensed there.

“Some of my friends are saying it’s just your parents who put the presents under the tree,” Haley yells.

I turn down the volume and glance in my rearview mirror. So, I sigh, it’s begun.

“Hmm, they are?” Buying some time, I ask, “What do you think?”

Haley noticed a few years back that not all Santas are created equal. It wasn’t the Halloween-grade red suits, or even the slip-on shoe covers in lieu of black leather boots. No, it was the beard. Perfectly groomed white facial hair with a slit for the mouth signaled fake. Luckily, she accepted the explanation that Santa needs helpers around the world, and while they aren’t the real Santa they are bona fide representatives sanctioned by the Master Elf himself.

When the subject of Santa sightings came up with her younger cousins — so many Santas, so little time — she bragged, “I’ve seen the real Santa,” as in, “you just think you have.”

“At Bass Pro, in Columbia,” she clarified.

Wide-eyed, her spellbound audience gasped, “But, how do you know it’s him?”

“Well,” her eyes darted up to the left, “he’s pretty old, kinda fat and his beard is dusty and oldish. He’s the real one.”

This year, however, we’re skating on thin ice. At 10, her analytical ability and attention to detail are developing at an alarming pace. And she’s getting curious.

“I think that if there is really no Santa Claus and if parents buy the presents and put them under the tree themselves, that would mean that you and Dad are doing it, too, and all of these years you’re doing it, then you are LYING to the kids. Would you lie to me, Mom!?”

Curious and savvy. Case-in-point: The current question — brutal in its honesty — is almost impossible to answer.

Sydney still believes, though at 14 she’s surrounded by peers who’ve long since traded the childish story for a “nobody believes that” attitude, cue eye-roll. But because of Down syndrome, like many developmental phases, she will get there when her little sister does, and Haley isn’t in a hurry to grow up. Maybe it’s her role as baby of the family, but she’s made a conscious decision to stay arrested: She refused to potty-train until 3, and no amount of pleading would coerce her to ditch the diapers. She hung on to her pacifier until 4, hauled her booster chair out of the trash at 7 and to this day lapses into baby talk.

But, as anxious as I’ve been for her to progress, I’m not ready for this childhood rite of passage. Her innocence is adorable; Christmas seen through her eyes becomes new again for us as her parents. The year she was in second grade, she hung a tiny stocking next to her regular one with a note that read: “Merry Christmas, Santa Claus! I love you! This is mine too, Haley Kent! Shign if yove been here!” (sic) At the bottom she penciled two boxes to choose from: “Been here” and “not been here.”

Perpetuating the magic for my girls takes me back to my own childhood, revisiting my father’s firsthand account of seeing Santa. My brother and sister and I would beg to hear the tale: In the wee hours of Christmas morning, when everyone else was sleeping, he heard sleigh bells and looked up just in time to spy Santa’s sleigh flying away. The fantastical vision of my dad as a freckle-faced farm kid, leaning out an attic window into the cold night air, gazing into a starry sky and seeing something so rare, made me shiver with delight and more than a little envy.

He solidified our confidence by staging a Christmas morning I’ll never forget. Rushing into the living room before dawn, utter amazement stopped us in our tracks. There, on the shag carpeting before us, large foot prints walked directly out of the fireplace and to each present laid out on display; for me, it was a Crissy doll, with long red hair that grew from the top of her head when her belly button was pushed — exactly what I’d asked for.

And my dad isn’t the only father (or grandfather) committed to creating wonderful memories for their kids. In the Kent family, Santa has made several appearances. Announced by approaching jingle bells, he’d enter with a “Ho, ho, ho, Meeeeerrrrrry Christmas!” and a bag of presents on his back. The kids were fascinated by this special, home visit.

One year Santa made a substantial impression on our youngest. Spending time with each, he welcomed the children to sit on his lap, even the teenagers. Shy, she hung back, but in a big booming voice he said, “Haley, come sit,” slapping his thigh. “Ho, ho, ho. Have you been a good girl this year?”

Ducking her head she answered, yes, she’d been good. She hugged his furry neck and thanked him politely. Then, present in hand, she hopped down and hurried to her daddy, whispering ecstatically, “He remembered my name!”

It never gets old. The excitement never wears thin. And the kids never make the connection that PaPa is nowhere to be found during Santa’s visit.

“PaPa, where did you go? Santa was just here!”

“He was?! Well, Jim-ah-nee! I go downstairs to get a beer and I miss everything.”

My husband, too, loves to see his daughters enthralled with the wonder of the season and is not above artful manipulation. One Christmas morning, he called urgently, “Girls, come see this!” In footie pajamas they padded across the floor. Peering through the cold glass of the patio door they saw, lying on the deck, under a dusting of snowfall from sometime during the night, a pile of reindeer droppings, a tell-tale sign that Santa — and his reindeer — had indeed been there. And yet another example of what a father will do for his children.

“Is Santa real?” my children want to know. As they face this inevitable epiphany, my hope is they won’t outgrow their belief in the mystical, but will see the spirit of Santa in the ones they love, and everyone around them, if they look closely. And most importantly, it can always be found within them. It isn’t in the goods. It’s not about the stuff: the loot they stockpile, the stack of toys guaranteed to be broken by New Year’s.

In fact, the risk of greediness arising from a Christmas morning piled high in crumpled wrapping paper threatens more disillusionment than questioning Santa’s existence. What I want my girls to get is that the celebration of Christmas — Santa Claus and his jet-setting reindeer delivering presents on one night of global magic, or the miraculous birth of a baby long ago under a star followed by wise men from far away bringing precious gifts, or both — is not about the gifts themselves, but the connection between the giver and the receiver. It’s about the exchange of love and the phenomenon of belonging to each other.

The most magical Christmas memory I have is of the night before, when I was in second grade. I’d woken up and tiptoed down the hall. Afraid I’d be in big trouble if discovered, I peeked stealthily around the corner into the living room. It wasn’t Santa that I saw, but my parents, sitting on the couch together in the dark, the twinkling lights of the tree casting a glow, soft music playing on the stereo turntable. Unseen, I watched, mesmerized. The very air was enchanted. I can still remember the voices of the Ray Conniff Singers:

“And when you’re giving your presents, don’t forget as you give them away, that the real meaning of Christmas is the giving of love every day.”

Their heads turned at the same time, but instead of shooing me back to bed, they motioned me over, making room between them and handing me a mug of hot chocolate; my mom on one side, my dad on the other. Time stopped. Pure love surrounded me. I believed.

“So, I guess you have to decide, Haley Bug.” I offer this to my daughter by way of an answer.

“Well, my friends say, ‘You don’t still believe in Santa, do you?’ and I just go with the flow and say no so they won’t make fun of me, even though I really do believe.”

Saddened that she needs to protect herself from peer pressure, I’m nonetheless touched that her child-like outlook prevails, at least for one more year.

“But, I have a plan. This year? When we go to Bass Pro? I’m going to whisper in Santa’s ear, ‘Are you the real Santa?’ What do you think he’ll say, Mom?”

I smile, “I don’t know, sweetie. Maybe he’ll say, ‘Do you think I’m the real Santa?’”

“Hmm. I think he is. Besides, another reason I know? Last year you two were exhausted and I know there’s no way you could do all that in one night.”

 
 
 

Leave a Comment

Filed under Aging, Babies, Christmas, Enlightenment, Family, Growing Up, Letting Go, Memories, Motherhood, Siblings

Becoming

I love teenagers. I do. Everything about them: the awkward, the self-conscious, even the angry bits. I’m especially intrigued by the way they shed their childhood like a skin and emerge a newer, older version of themselves. I even kind of love parenting teenagers. I know–it sounds nuts, but I feel I hit my stride as a mom when my kids hit double digits.

My babies slathered me with sloppy, open-mouthed kisses and clung to me like monkeys with their dimpled fingers; their miniature selves extensions of my body, not quite separate. Pressing them, sweet smelling and downy to my chest, was intoxicating. It comforted me as much as them. But there was the sleep-deprivation and the crying and the poop. So much poop. Not my fave.

My toddlers left sticky handprints on the walls, dropping crumbs in their wake and careening clumsily through our days, insisting loudly, “No, I do it!” Mini-tyrants, they asserted their independence and in conquering their world, dominated mine. Adorable to grandmotherly types who no longer dealt with blow out tantrums and whole gallons of spilt milk. Pass.

My preschoolers asked thousands of questions starting with “Why . . . ?” Insatiably curious, they chased sensory input with the sole purpose of soaking up knowledge . . . and destroying my house. Their constant motion and boundless energy siphoned me dry. Plus, the requisite mommy activities filled me with dread: crafting was code for a special sort of hell surrounded by Elmer’s glue, paper plates, and a million tiny beads. Not my best skill set.

In elementary school, baby-fat gave way to long legs as my kids morphed into capable young people with new skills and talents. They lived large and played hard and the noise threshold hovered around ear shattering, leaving me slightly deaf and functionally catatonic. No thanks.

By pre-pubescence, mysterious internal stirrings accompanied outward signs of impending change. On the cusp of a developmental leap, my children remained child-ish, but their sense of savvy and street smarts emerged. Thinking for themselves and testing limits, their personalities started taking shape and I enjoyed their unique brand of humor and conversation. All in all, a delightful stage, except for the hygiene: showers, toothpaste and clean underwear — not even on their radar. Getting closer.

With full-on adolescence, things got much more complicated; the physical work of parenting shifted dramatically to mental stress and strain. I expected the hormonal mood swings, the acne, the shocking growth spurts and voice changes, but I did not foresee that while their bodies mimicked adulthood and their psyches masked a false bravado, their brains — and hearts — remained immature and thus vulnerable. They were babies in grownup bodies, but I loved being with them. My goal was to keep them talking. I believed that communication was key to navigating the rough waters of parent-teen relationships and in my book, we succeeded. They felt safe enough to come to me with anything. Well, ‘aaaal-most anything.’ This according to my husband.

Don’t get me wrong, it was no nirvana, and I will state for the record, sometimes it was God-awful. I was certain we’d be swept under by those rapids, but we made it. And over the years, the intensity has faded — ironically, not unlike labor pains — and what lingers are gratifying memories of my older children becoming the smart, funny, compassionate and talented individuals they are today. With the age difference in our kids, it’s two down, two to go.

Now Sydney, 15, the older of the second batch, traverses the current. At schedule pick-up walking the halls of the high school, crowded with teenagers a full head taller than my petite daughter, I follow behind, watching her stride confidently down the corridor. I feel an acute sense of poignancy so sharp it’s almost painful: my girl, who happens to have Down syndrome, is a freshman.

While it’s true that many people with intellectual disabilities will retain child-like qualities, they do mature mentally, physically and emotionally. Sydney initially resisted the changes to her body. “I don’t want to become a woman!” she cried. But with the onset of her cycle, she’s embracing her new place among the women in our family and wants to share the news. With her trademark lack of self-consciousness and social decorum, she makes random comments — in public, no less. “I’m wearing a new bra!” and “Me and Mom are growing boobs. We’re boob twins.”

Sydney is intuitively aware of her disability and how she fits into social manueverings. As a cheerleader, she has an opportunity to ‘belong,’ but her success depends on me going to practice with her. I learn the routines and then teach them to her; practicing over and over and over. I’ve not always been cheer-ful about doing it. More than once I thought it was too much, for both of us. However, I also know she’s competent — she can do it, I’ve seen her! Despite the sighing and the tears, it’s worth it to see her achieve, on her own merit. Besides, she looks darling in her uniform.

Raising kids requires discernment about when to protect and when to prod, when to hold back and when to let go. With special needs kids, it’s easy to err on the side of caution and unintentionally block their progress. Sometimes we just need to get out of the way.

Like hatchling chicks, adolescents gain strength by breaking through their shells, earning a resilience they’ll need to live on their own. In many ways Sydney is a normal 15-year-old who loves YouTube and shopping and Taylor Swift and pizza parties. A teenager who rolls her eyes and says, “Mom, you’re ‘bare-assing me!” Who wants a phone and her own room. And a boy friend.

Being a mom to teenagers is the ultimate exercise in frustration, but I kinda love it. Sydney has begun the trek to independence and her sister, our last, is not far behind.

A few nights ago, Haley, age 11, came out of her room sobbing, during the scarce quiet time between the girls’ bedtime and our own. From my seat on the couch I watched her make a beeline to my husband, Steven, who stood in the kitchen. She wrapped her arms around his waist and buried her face in his belly.

“What’s the matter, love?” Daddy asked. “Did you have a bad dream?”

She cried and mumbled something incoherently.

“Sweetie, I can’t understand you,” he said, bending over and untangling her from his torso.

Pulling her head back and wiping her nose on his shirt, she took a deep breath and wailed, “I’m crying but I don’t … know … why!” and collapsed into fresh sobs.

He rubbed her back sympathetically, but looked to me helplessly, raising his eyebrows and shrugging his shoulders as if to say, “Um, what do I do with this?”

“Come here,” I said soothingly and stretched my arm out. She settled into my lap, curling into my body as I stroked her hair. “Chickadee, I know exactly how you feel.”

Some things, we don’t grow out of.

Leave a Comment

Filed under Adolescence, Aging, Babies, Down syndrome, Family, Gratitude, Growing Up, Memories, Motherhood, Parenting, Special Needs

And Miles To Go Before I Sleep

It’s morning and I awake, not to an alarm, but to bright sunlight streaming through a crack in my door. I’ve slept so deeply, cradled maternally by my mattress, that the sheets left deep creases on my skin. My consciousness attempts the swim upward through layers of fog. “What day is it?,” I wonder. “Where, exactly, am I?”

With great effort, I roll over and read the digital numbers on the bedside clock: 8:29 a.m. The house is quiet, no one up yet. And then I remember. Two months into summer vacation and today is our first free day — no camp, no summer school, no nothin.’ In a few minutes Sydney and Haley will ransack the kitchen, eating peanut butter out of a jar and reheating chicken nuggets for breakfast like wild monkeys. But I do not care and sink back under the delicious covers.

Child-rearing and chronic fatigue go hand in hand, like hot wings and heartburn.

I love my bed and I’m not ashamed to admit it. Just the thought of my comfy pillow-top soothes my strung-out mind. This bed knows the contour of my body and calls to me seductively, “Lisa, come lie down.” And I do. Whenever possible. In the late afternoon, especially, once I am horizontal, I’m out. “People who nap are lazy,” I used to think, back when I was judgmental and more than a little pious. Back then I had yet to become a mother.

Almost 30 years later, I can’t remember the last time I felt rested. Child-rearing and chronic fatigue go hand in hand, like hot wings and heartburn. As a new mom, sleep-deprivation on the level of Chinese water torture started when my first adorable but very loud newborn arrived and immediately took all nocturnal activities hostage. My initial resistance to being jolted out of an altered state turned to incredulity when I started to realize I would be sleep-walking through life long after 3:00 a.m. feedings ceased. The epiphany was driven home after it was too late, after I chose to have more kids at an “advanced maternal age,” thus clinching the deal: I’ll rest when I’m dead.

I can’t remember the last time I felt rested.

Facing this reality is much like processing grief. It comes in five stages: denial, anger, bargaining, depression and, finally, defeat. I mean, acceptance. The stages aren’t always in that order and some resurface frequently. Like bargaining. Especially bargaining. We all know one should never negotiate with terrorists, even if they are tiny.

But in our defense, they’ve worn my husband and I down over the decades, reducing us to desperate acts committed in exhaustion-induced delirium. “Will you lie down with me?” our children beg with big innocent eyes.  And we cave, letting them snuggle as we read a story, fighting to keep our eyes open. Then we wake with a start four hours later, fully clothed and drooling.  Or worse (much worse), we let them into our bed. That, my friends, is a trap. All angelic with the gossamer eyelashes and the delicate skin, they curl up close, their soft breathing rhythmic and hypnotic. They lure us in and lull us to sleep in the sweetest of embraces. Pure bliss. For about 5 minutes.

The family bed is a myth.

What follows can’t really be called sleep, collapsing into a coma only to be jolted awake by a sharp knee in the shin or a sudden slap across the face. Through the night, they migrate across the bed’s surface, rooting like baby pigs, thrashing and turning, never still for more than a few moments. Heat-seeking, their little feet reach for the nearest body part. The broad expanse of Daddy’s back makes a good target, right between the shoulder blades. By morning, the bed resembles a war zone, the blankets wadded and twisted or in a heap on the floor.

The family bed is a myth. It’s actually more like musical beds. At some point the willingness to do anything for a good night’s sleep overtakes good judgment. Dad often is exiled and, gone in search of a place to land, he ends up downstairs in the guest bed, or on the couch, or in a bunk bed, wedged up against the wall, his 6’3” frame contorting to fit — or not — the twin mattress with twin-sized blanket and the twin sheet that slides over the protective plastic liner. My poor husband is a character from Dr. Seuss’ One Fish, Two Fish, Red Fish, Blue Fish. “Who am I? My name is Ned. I do not like my little bed. This is not good. This is not right. My feet stick out of bed all night.”

He’s been displaced so often the girls refer to our bed as “Mommy’s bed” and frequently hit me up to fill the assumed vacancy.

There’s no going back; parenting is a long-term gig.

I should be grateful that only 50% of my children are difficult sleepers. In each of the two sets, there is one good sleeper. Of the first batch, Melissa was the one, sleeping like a dream and waking up happy and contented. Jeremy, not so much. He put up the good fight at bedtime and woke either hyper or cranky. Constant ear infections caused him to wail in pain for hours. We’d rock all night, both of us drifting off just as the sun came up.

With this second round of kiddos, Sydney’s the piece of cake. The cliché that kids with Down syndrome are good sleepers is true. As a baby she would lean out of my arms and reach toward her crib at nap time. As a teenager she says, “I’m tired. I’m ready for bed, Mom,” and down she goes. Mornings start with a hug and a shy smile and flow from there. Easy.

Haley couldn’t be more opposite. Bedtime drags on interminably: She’s thirsty, her head (throat, foot, bottom) hurts, she doesn’t have the right pillow, she’s too hot, too cold, her nose is stuffed up. She can’t sleep. She can’t stop thinking. She’s excited, she’s sad, she’s needy. “Mommy, I want you,” she says, reaching her arms out, fingers clutching. “I haven’t spent any time with you!” Steven calls her a little tick. Even after she’s down, when cannot count on the respite. She comes stealthily into our room, appearing suddenly at my bedside, her hand like a woodpecker tapping my shoulder. “I had a bad dream,” she whispers loudly. Or she climbs in over us, jostling the bed, worming her way to the middle, and diving between us.

You’re going to be tired for a while.

Though our older children eventually grew out of sleep disturbances, my weariness remained; the cause merely shifted. Teething and nightmares and the sudden onset of stomach flu at 1 a.m. morphed into loud music and late-night phone conversations and the unbidden images of worst-case scenarios 30 minutes past curfew. Anxiety and stress and overwhelm continued to plague my dreams as they became adults and headed into the wide world. Now, they’re having babies of their own; more  worry  to steal my sleep. There’s no going back; parenting is a long-term gig.

Coffee is my salvation in the morning and a glass of wine in the evening is my reward for making it through the day, but the cycle can lead to insomnia, the most maddening affliction. When the children are finally sleeping, I lie wide awake, completely and utterly spent, yet unable to let go. And if I’m perfectly honest, there is, as well, the self-induced lack of sleep, the time I carve out of my repose, because, by damn, I must have some to myself! I set my alarm for 4:00 a.m. to teach 5:30 a.m. classes, sacrificing the extra Zs so I can meditate and prepare, unhurried and in peace. I stay up until 2:00 or 3:00 a.m. to write, because the house is quiet then and I am, at last, alone.

This is my life. The one I chose. The one I love.

The other day I ran across my old journals from the mid to late-80s. Steven pulled down a few dusty boxes from the attic and as I paged through entries written by my much younger self, I was intrigued, as if observing someone else’s life. The narrative was passionate with a tendency for the dramatic and the words that emerged repeatedly were, “tired,” “exhausted,” “overwhelmed.” If I could, I would say to that young woman, “Honey, you’re going to be tired for a while – it comes with the job – but you’ll be all right. Take really good care of yourself. It’s crucial if you are to go the distance. Rest when you can. Take naps. It’s not lazy! And remember the love. It will see you through. Sometimes, you’ll just be tired. And that’s okay. It will all be worth it.”

And it is, even though I’m still tired, falling asleep at rock concerts, stop lights and in front of the TV. Nodding off at movies, kids’ concerts and even at weddings. I pass out while reading before bed, mouth open, glasses on, and half-wake to my husband tenderly taking my book off my chest, my glasses off my face and, after placing a kiss on my cheek, turning off the light. I’m still tired, but I start most days feeling energetic and hopeful. The demands of our busy family leave me running on empty by afternoon and it’s just the way of it. This is my life. The one I chose. The one I love.

It will be worth it.

Haley said it best: “In the morning you’re ‘Happy Mommy.’ In the evening you’re ‘Tired Mommy’ because we accidentally exhaust you.” I know the little (and big) people I’ve birthed don’t mean to wear me out, they just need me. Which is an amazing feeling. I’m the mom, and if all it takes is a nap to turn me from Tired Mommy to Happy Mommy, fetch me my pillow.

2 Comments

Filed under Aging, Babies, Childbirth, Down syndrome, Family, Motherhood, Parenting, Self-Care, Special Needs

The Long Haul

Photo by Randee McClung

I’m washing up in a restroom at the Oklahoma City airport and for a moment I can’t place my location: hospital? hotel? restaurant? Elegant water faucets and gleaming granite countertops add to my sense of disorientation. I don’t even recognize my own hands. Looking down at the palms rubbing together, the lather foaming, I watch with detachment as water rinses the suds away to reveal age spots and scars. The shrieking of a turbine dryer cuts the air and I’m fascinated and horrified in equal measure by the effects of high-velocity air on crinkly, tissue-paper skin as it undulates against bird bones, exposing skeletal phalanges and large blue veins, tendons as taut as violin strings. These can’t be my hands.

But they are, as are the 50 years it took them to become this weathered. As is this face that looks back at me from the mirror, eyes reddened and tired, cheeks gaunt — succulent youthful flesh gone, hair a bit frizzy. I lean in closer and smooth my makeup. I reapply my lip-gloss and pat down a few errant curls.

“You’re a grandmother,” I think, scrutinizing my reflection.

Two weeks and two days ago my first grandchild was born; the son of my only son. Jeremy and his wife Carly live 7½ hours south of us. This is my second trip down. The first, an urgent drive prompted by the onset of labor was a magical drive through the night, alone with my thoughts. I wasn’t sure I’d make it, but, as it turned out, life threw the kids a few curve balls. From a long and difficult labor to an emergency C-section to a baby in the NICU, nothing went according to plan. They were thrust into an unforeseen reality both frightening and uncertain.

When it became clear the baby wasn’t going home any time soon, I stayed. It wasn’t even a choice; there was nowhere else I could be. My husband, Steven shouldered the domestic load, my colleagues covered at work, and my busy life went on without me.

After ten long days Ashton was diagnosed with a heart defect that required an immediate operation. I went home for a few days to regroup and came back for the surgery. This time, with Steven traveling on business, I took my daughters who still live at home, Sydney, 14, and Haley, 10, out of school and brought them along. On that momentous day, they sat with us in the waiting room. Headphones on, they munched on Cheez-Its and Slim Jims while I kept my hands busy knitting a baby blanket. Thoughts of the pediatric cardiothoracic surgeon operating on a tiny newborn’s heart the size of a walnut raced around my mind. I tried instead to concentrate on the prayers uttered by many to guide those skillful hands.

Time stretched then folded in on itself; surreal, interminable. Then suddenly, the gowned doctor was there and we exhaled in learning Ashton tolerated the delicate procedure beautifully. A full recovery was expected; the new family would be on their way home soon.

Heady with relief, celebratory even, we’ve come to the airport now to pick up my husband; his absence has been felt. With some logistical creativity — a bit of planes, trains and automobiles — we maneuver to get everyone where they need to be. And in the midst, our typical routine churns along demanding attention. A perpetual balancing act, it’s been the norm for a very long time. Making the choice to spread our children out over 18 years has resulted in a parenting marathon.

We have friends in the trenches of young parenthood; their lives filled with diapers, sleepless nights and temper tantrums. Friends running from soccer games to piano lessons, who help with homework and college applications. We meet them at orchestra concerts and cheer practice and neighborhood BBQs.

We have friends in empty nests; their children gone to college or moving away to embark on careers. Friends welcoming new members into their family as their kids get married and have babies of their own. We swap stories about in-laws, the cost of weddings, and the phenomena of boomerang kids.

We don’t, however, have many friends who’re in both, and who consequently experience what I call CPF: chronic parenting fatigue.

Our oldest, Melissa, was a senior in high school when we were pregnant with our youngest, a fact which repulsed her.

“Ew!” she said, “You’re going to be old parents.”

And she was right. We’re kind of old already and we’re not done yet. I often wonder what will be left of us when all the kids are gone? Who will we be by the time we get there? We are not the same people we once were, not the same couple. The idea that marriage is both strengthened by the challenges of family life and crushed under its weight seems a paradox, but it is profoundly true. Steven and I have never stopped loving one another, but this is not to say we always like each other. Stress and exhaustion make us irritable and sometimes we’re just not nice. Everyone else gets the best of us and all that remains for our beloved is the dregs: we are robbed of the person we love most.

Those are the times I miss my sweetheart. I miss the belly laughs his sharp wit never fails to provoke. I miss his pride in my accomplishments, his comfort when I’m melancholy. I miss the pleasure of his company; gourmet dinners and stimulating conversation. I miss the end of the day when our minds unwind and our bodies entangle; when we make space for each other’s innermost thoughts. I miss spontaneous weekend getaways and leisurely lovemaking. I miss his everyday kisses.

Without these things we’re great business partners, roommates and co-parents, but we aren’t the friends and lovers we started out being. Without this spark of intimacy, our day-to-day is reduced to an endless to-do list wearing us down. And out. As Garth sang, we’re “much too young to feel this damned old.” Stepping out of our responsibilities and indulging our love affair is the only way we’re going to see this through.

It’s beautiful to watch our son and daughter-in-law lean together when life necessitates they surrender control; when patience and the ability to set aside their own needs is called for. Faced with this daunting new role, I wonder if our son knows his parents grapple with the same demands and sometimes teeter on the edge themselves. I doubt he knows what’s ahead in the long haul, but I do know the richness will be far greater than he could ever imagine.

I hitch my purse to my shoulder and take one last look in the mirror.

“Not too bad for a grandma,” I surmise and turn to walk out.

Leaving the restroom my eyes cast forward down the long shiny corridor to the baggage claim where the kids have been waiting for Steven. And then I see him. I drink him in like water in the desert.

He bends over to hug Haley. Sydney throws herself over his back. Jeremy and Carly cluster around him. Everyone is talking at once and I walk toward them, unnoticed. My husband looks up over the top of Haley’s head and our eyes meet. I can’t help but smile as my feet lead me steadily to the arms I can feel around me before I get there. Weaving my way through the commotion, I come in closer and stand on my tiptoes.

“Hey, Granddad,” I whisper, brushing my lips against the 5-o’clock shadow on his jaw. “Let’s go see our baby.”

In that moment I love every chaotic, ecstatic, dynamic morsel that makes up our life and it is all wrapped up in this man, inextricably woven into our journey together. He’s my one and only. Eventually, we’ll make it to a tropical paradise or at least to St. Louis for a weekend, but for now, this is all I need.

 
 
 
 
 
 
 
 
 
 

2 Comments

Filed under Aging, Babies, Childbirth, Grandparents, Gratitude, Growing Up, Marriage, Motherhood, Parenting

Just Like That

Aaaaaaand just like that, Christmas is over.  The preparation, the anticipation, the actualization; come and gone for another year.  My beautiful live tree adorned in sparkling red and gold is dead, morphed into an endearing Dr. Suess caricature; its pliant needles turned brittle and sharp, its majestic branches drooping sadly, ornaments lowered to the floor in resignation.

But, I’m in no hurry to take it down, even if it is a 10’ fire hazard.  I want to sit with it a few more days, turn on the lights and gaze at all the pretty decorations in my house; pretty things that hold pretty memories.  The presents have been opened.  The food has been devoured.  The kids have gone home. But the lights can wait to be wound around plastic spools, the garland to be coiled into plastic tubs and the tree to be hauled out to decompose. I’m not quite ready to let go.

All our children were here this year – the ‘little girls’ who still live under our roof, and the ‘big kids,’ who grew up and left years ago. Melissa and Jeremy were 9 and 7 when I married Steven and we celebrated our first Christmas as a new family.  They were 14 and 12 when Sydney was born, her diagnosis of Down syndrome an unexpected turn of events, and 18 and 16 when Haley came along, her very presence an unexpected turn of events.  As older sibs, they were a huge help, stepping up to the responsibilities of dealing with their younger sisters’ special needs.

And just like that they’re 28 and 26, bringing their significant others home, growing our family and adding more people to love.  Melissa lives, with her partner, Jey, here in Columbia, For now.  She didn’t always, and one day she will spread her wings to fly far and wide. But that day has not yet come.  Jeremy recently landed in Oklahoma City with his wife, Carly; albeit temporarily.  The 450-mile stretch that separates us now is a much smaller distance than the 1300-mile span it used to be.  I’m hanging on to every day that they’re close by.

Melissa

Because of it, we don’t often get Christmases together.  It’s been four years since the last so I wanted to make this a big one and the preparations started early.

“Are you sure you want to spend that much on a tree?” my husband asked, checking the price tag on a gorgeous Balsam Fir.  He craned his neck to look up, “I’m not sure it’ll even fit.”

“Honey, the kids are coming home,” I reminded him. “I want it to be special.”

Of course he gets it; he shares my inclination to go all out.  It’s the same drive that lead him to the roof for 12 hours in 30 degrees, hanging brand-new LED lights, clip by clip as he inched along the gutters and peaks, only once sliding to the edge and nearly plummeting to the ground (thank God for the satellite dish).  Tons of work, more than a little frustration, but the result was magical and breathtaking.

The tree went up in the corner of the living room; a few inches lopped off the top left just enough room for a delicate illuminated star.   Fragrant evergreen scent, full of promise, permeated the house,  We trimmed the tree while listening to Pandora’s “Traditional Holiday” station and took turns identifying the crooners; Bing Crosby, Perry Como, Nat King Cole, Dean Martin.  We shopped; at the mall and at our computers. We wrapped and wrapped and wrapped.  We got out the good dishes.  We baked and we cleaned.  We stayed up late and got up early, exhaustion crowding excitement, knowing it would be worth the effort.

And then they were here.  Melissa and Jey came from their little house downtown, and Jeremy and Carly drove seven hours on the interstate, stopping regularly because my daughter-in-law is 33 weeks pregnant.  Their first, a boy, will arrive shortly before their third anniversary.  And just like that, my boy will become a father.  7 lbs. 1 oz. at birth, he now towers over me and swallows me in bear hugs.  I can picture him holding his tiny infant son in those arms, just as I held him.

Our time together didn’t disappoint; it was full and rewarding.  We told stories.  We played games.  We ate and then ate some more.  We watched ‘Home Alone,’ 1 and 2, the kids reciting the classic line in unison – “Merry Christmas, ya filthy animal.”   And ‘Christmas Vacation’ with Chevy Chase, the hilarious spoof of stereotypical holiday foibles; both funny and touching as we recognize ourselves in Clark Griswold, a hard-working family man determined to create the perfect holiday for his clan.  We love him for his indomitable spirit in the face of mounting obstacles and catastrophic property damage, and for his vulnerability that reveals itself in the midst of calamity.  Locked in the freezing attic, he bundles up in a woman’s fur coat then stumbles across a box of old film reels.  Before we know it, he’s projecting black and white movies onto a sheet, frustration and mayhem forgotten.  The juxtaposition of a grown man lost in childhood memories, wearing his mother’s turban while a sentimental tear slips down his cheek captures the complexities precisely.

We also watched our own home movies.

“Mom, look. I found some old videos,” Jeremy yelled from the guest room, emerging with a crate of VHS cassettes, my handwriting on the labels: ‘Melissa and Jeremy 1988.’

“Let’s watch ‘em!”  He said with his typical enthusiasm.

We dimmed the lights and gathered around the big screen. I loaded the tape into a borrowed VCR.  It disappeared, sucked inside with a click.  The play button lit up, images sprang to life on the screen and just like that, it was 25 years earlier.

A three-year-old girl in pink sponge rollers eats tortilla chips out of the bag on a couch with her best friend.  She wears panties and nothing else, watching King Kong from 1976 with Jessica Lange.  She says to her baby brother blocking the TV, “Germ-y, get out-uh-our way!” leaning around him, intent on the images in front of her.

She sits on the floor of a horse stall in her grandpa’s barn.  A new litter of puppies was born in the hay and a squirming puppy licks her face as she holds it.  Giggling she says, “He likes me!”

A toddler in diapers sports a blond mullet, the back long and curly.  He wears top-siders with no socks.  In the sunshine he climbs into his Little Tikes car and walks his feet ala Fred Flinstone to make it go.  Hands on the wheel, he steers his yellow and red cozy coupe down the sidewalk and off the curb, lodging it against a parked car.  He cries in a bitty voice, “Mama, I stuck!”

He holds his hands out to catch a ball and it hits him in the face, bouncing off.  Exploding with laughter, he runs to chase it then heaves it back with all his might.  Not quite in control, he jumps up and down then trips over his own feet, yelling, “My turn!  My turn!”

A young woman in mom jeans, the waistband hiked up under her armpits, bends to speak in a loving voice to her babies.  She wears her hair like Dorothy Hamill with a perm.  She has clear eyes and a soft face; she is self-conscious and uncomfortable in her own skin.

Time bent.  I couldn’t get my bearings as I glanced from the wide screen TV to the kids watching themselves, and to their partners watching their loved ones as children.  They’re all laughing and taking delight in the obvious evidence of personalities, even early on.

Melissa was thoughtful and a little shy; content. Her easy-going nature radiated visibly and she smiled easily and often.  She was innocent and sweet and unassuming.  Her motto was, life is great—I’m happy to be here.  She was pure, authentic.

Jeremy couldn’t sit still or stay quiet; his exuberance was uncontainable.  He lived large and loud, grabbing on to every moment and demanding attention.  Whatever he felt, he expressed.  His motto was life is great—what’s next?  He was eager, energetic.

Then just like that, my daughter is putting herself through college, returning to school with purpose, pursuing an advanced degree in psychology.  She’s an honor student with scholarships and awards, a leader, a camp counselor, a nanny, possessing rare qualities for working with children and teenagers.  Babies love her, children flock to her and adolescents confide in her.  She’s smart, caring and making a difference in the world.  She is pure and authentic.

And just like that, my son is saving lives in his profession as a paramedic.  He responds to people’s worst nightmares; accidents and overdoses and violence, guiding them through crises, ministering to body, but also to mind and spirit.  His medical skills combined with his compassion make him a calm force and a steady presence.  He’s a husband and provider and soon to be a parent.  He’s smart, caring and making a difference in the world; he is eager and energetic.

This is how I know it to be: life flies past in a moment.  And still, I take it for granted. Still, I assume there will be 25 more years until the realization hits; we don’t know what lies in the days ahead.  Just like that things do change.  And I am brought up short.  I’m in awe of the gift of my family.  My family, here, now, together.

We posed in front of the giant tree, me in the middle, surrounded by the ones I love the most:  Jeremy with his arm around his wife, Carly holding her beautiful belly and within it, our grandson; Melissa seated in front of her girlfriend, Jey, whose hands were placed gently on her shoulders; the little girls at our feet in their Christmas pjs, and Steven, my partner, my love, standing ever-present behind me.

Just like that it’s 2014.  I can’t stop or even slow down time, but I can hold on loosely—I’m not letting go.  I can take it all in and savor it and relish it.  And I guess I can go ahead and take the tree down.

Leave a Comment

Filed under Adolescence, Aging, Babies, Childbirth, Christmas, Down syndrome, Family, Growing Up, Letting Go, Loss, Memories, Motherhood, Parenting, Siblings, Special Needs

The Only Way Out is Through

After

Grief lives in our house. Among the furniture, between the windows and the walls, it sits, thick and unmoving. Grief rides heavy on my chest. I can’t get a good, deep breath these days. It weighs down my husband’s shoulders and molds his features. Grief seeps into our nights of restless sleep and dreams of forgetting, of waking, and then remembering.

Image by FelixMittermeier from Pixabay

We lie on our bed listening to the falling rain. Wet, fat drops pelt the windowpane and punctuate the silence. He curls up behind me, concave where I am round; our bodies fit together, pieces of a puzzle. In the stillness, the edges between us dissolve. I fade into him, absorbing his substance. A crack of thunder sounds. I inhale sharply to pull the air into my lungs. He draws a deep breath in through an open mouth, his chest heaving. With a sigh, it rushes out. Together we breathe our mourning. There is comfort in our solidarity and we close our eyes to accept the brief respite.

It occurs to me that my father-in-law will never hold his wife this way again.

Before

If anyone could cure cancer with sheer will and devotion, it would be him. He will not leave her side. He sits, he stands, he paces. He drinks coffee and more coffee. He questions the doctors and the nurses and the therapists. He hopes against all odds. He isn’t ready.

He sleeps in a recliner pulled up next to the hospital bed. He covers her hand with his and they talk in the dead of night, recounting their fifty years of shared memories. He helps her try to hang on and when it becomes clear she cannot, she helps him try to let go.

Until a year ago, the only loved ones I’d lost were my grandparents who had lived full lives into their 80’s. I still miss them dearly and lament their passing, but tragic death, to those young and taken too soon, by illness or accident had not yet entered my experience. Within a span of a few months, loss hit hard, lodging painfully in my sternum. Three deaths. My friend from childhood, my brother’s son, my sister’s husband. And now, my husband’s mother.

I can’t bear it, but somehow I must stay present to witness. This is the gift I can give my family by marriage. I am wife, I am daughter-in-law, I am sister-in-law. But my own crisis is significant. I am losing a mother, too.

I was twenty-eight when I met her. Newly divorced and unable to travel to my own family far away, I faced my first Christmas without my young children. My closest girlfriend insisted on taking me home to the bosom of her Midwestern family. Depression had me in its clutches. Morose and self-absorbed, I tried to decline. I wanted to retreat from the world at large and immerse myself in desolation, but she wouldn’t have it and dragged me across the country to Missouri.

I had never been anywhere east of Colorado, and all I knew were the clichés I’d heard. Friendly, kind and generous, the stereotypes of folks from the heartland held true, but more than that, these people radiated joy that spread to all within reach. Misery didn’t stand a chance when infected with their sunny optimism. In a noisy house full of activity, my senses were barraged: the smell of delicious food, the comfort of homey Christmas decor and quaint antiques, the resonance of children’s voices playing and adults laughing and talking all at the same time. My future mother-in-law welcomed me to her home, without conditions, without judgment. She simply loved me for being myself, a self she barely knew, but loved because her daughter loved me. I’d landed in a Norman Rockwell painting and it felt like being wrapped in a warm blanket after coming in from the cold.

I was teased for my wild hair and tie-dyed shirt and Arizona ‘accent.’ I gave as good as I got, though, imitating my future father-in-law’s Missouri dialect. “Well, now, you gotta take and go on past the ray-road tracks, that-a-way you’ll run right into that rest-runt. I tell you what, have they got great Eye-talian food. Jim-in-ey!”

We gathered around the large table as plates of turkey and ham and stuffing and potatoes were passed. I listened to stories from the past, each memory more outrageous, each teller louder than the last, boistesrous laughter erupting between the words that flew back and forth. We played board games until midnight and imbibed in PaPa’s famous punch, a delicious concoction of fruit juice, soda and what I’m fairly certain was an entire bottle of Southern Comfort. And on Christmas morning, when presents were doled out, I was handed more than one with my name on the tag. Gifts bought for me. And not just any gifts. How this woman knew exactly what I would love I will never know. The startling gesture touched me deeply. Can you fall in love with someone instantly? How about a whole family? They had me at “Welcome to Missouruh.”

My connection to her continued through the darkest time of my life. I felt doubly blessed to have my own mother to soothe my heartache and another mother figure who healed me unknowingly, simply by being herself. More visits and conversations allowed me to observe her ways, her smiling consistency and unflinching positive outlook, her effervescent energy. I came to know her well, and as they say, to know her, is to love her.

Three years later, as much a surprise to me as to everyone else, I discovered the love of my life right there in this family. Her only son, the brother of my best friend, proposed to me and I became a legal in-law, but I was already hers. I grew in devotion to her like Ruth to Naomi. “Whither thou goest, I will go.” She loved my children, and not just the Kent babies that came later, but those she inherited, my big kids, scooping them up and adding them to her brood like they’d been there all along, too. We were family.

Over more than twenty years and across hundreds of miles, we shared happy, contented times, and the inevitable tough times brought us closer still. But, this? This is beyond tough. The worst has happened: Mom is the heart of this family and losing her is unthinkable.

When the call comes it is unexpected and triggers a panic we try, and fail, to suppress.

Steven’s sister, my best friend, Traci says, “You need to come.  Now.”

With palpable urgency we throw things in suitcases, cancel appointments, and take the girls out of school, making the interminable drive to St. Louis at 80 mph. Reeling from shock, we don’t speak, but in our racing thoughts, we reach for anything to steady the lurching shift that’s thrown the world out of sync. Mom was okay just last week when they sent her home to recover from an arduous stem cell transplant. Even if she had a ways to go, she was definitely on the mend. But, now we know. The transplant didn’t work. Her body did not respond the way we’d hoped. For fourteen months the cancer attacked her viciously, resisting treatment after treatment, sometimes with near-fatal reactions. How unfair, how goddamned cruel, that now, after all she’s endured—transfusions, surgeries, hospitalizations, procedures that should have granted, if not a cure, at least more time, how devastating that she is left with this abrupt, horrifying end. She is only 69. As she said, “I was supposed to have more time.”

The reality hits when we reach the hospital. She is going where none of us can follow. Nearly everyone has come and Mom is surrounded by the ones who love her most, all three of her kids, middle-aged now with kids and grandkids of their own, her brother and sister, six of her eight grandchildren, and friends who have traversed the decades. Disbelief rocks us as we grope for meaning in this brutal certainty.

Compelled by prescience, though exhausted, she will not rest until everyone has been seen, the wrenching goodbyes a sacred ritual.

Special permission is granted to our young daughters to visit and when they enter shyly, she touches and kisses them. With heroic effort, between wheezing breaths, she helps them understand what’s happening.

“Remember when MeMe said everyone has a time?  It wasn’t time before but, well, it looks like it’s MeMe’s time now.” Her frail voice breaks and she pauses. “But it will be okay. Somehow it will be okay.”

They bend over her, careful to avoid the central line and oxygen cannula, for the last hug they will have. And after they’ve left, she weeps for the first and only time, utterly bereft, inconsolable.

Later, her girlfriend of more than forty years braces for their final farewell, putting a smile on her face before walking through the door.

“Hey, gal.  Whatcha doin’?” she says in a casual tone.

“Well,” Mom says, weakly, barely audible.  “Looks like I’m kicking it over.”

Bantering constantly, regardless of the situation, that is what they do. It’s how they say, “I don’t know what I would have done without you this year,” and “I don’t know what I’m going to do without you for the rest of my life.” They part not with ‘goodbye,’ but ‘see ya later.’ It’s not until Mom’s beloved friend is down the hall and around the corner that she finally lets go, collapsing into her husband’s waiting arms.

I’ve waited my turn, respectful of the pecking order. But I need to see her. I need her to know how I feel, but there are no words to convey everything she means to me.  For Good from Wicked plays in my mind along with the memory of sitting next to her at a live production of the Broadway musical—my birthday present to her—as lyrical voices resonated in the acoustical glory of the Fox Theatre. If I dared, I would sing to her,

I’ve heard it said
That people come into our lives for a reason
Bringing something we must learn, and we are led
To those who help us most to grow
If we let them
And we help them in return
It well may be, that we will never meet again
In this lifetime
So let me say before we part, so much of me is made from what
I learned from you
You’ll be with me like a handprint on my heart
Because I knew you . . .  I’ve been changed for good

Instead, I sit quietly by her bed, willing my love into her awareness as she lies sleeping. Suddenly, she opens her eyes and sees me. All that’s between us shimmers in the air. “I love you, Lisa Kent,” she says intensely. The blessing washes over me. “I love you, Linda Kent.” Tears are in my voice.  She knows. She ​knows.

Her goodbyes complete, the dying process begins in earnest. As pneumonia rages, her heart races and her breathing becomes torturous as her body fights for each inhalation. A sip of water to a parched mouth, soothing balm to cracked lips, a cloth to a fevered head, these only ease her suffering briefly.

“Rest now, Mom,” her oldest daughter, Lori says. “Just go to sleep.  We’ll be right here.”

But in between fretful sleeping and waking, she struggles to tell us one more thing. Barely able to form the words, she manages to utter, “I want us to stay a family.”

She’s worried that without her we will drift apart, let conflict come between us. She is adamant, and rightly so that we respect her wishes.

“I want you to love each other and be happy.”

“We will, Mom,” we say in unison. 

“Promise?” she pleads. She must know we will take care of each other before she can let go.

“Promise.”

The nurses move around us now as we keep vigil. Confined to a hospital room, a waiting room and a hotel room, perspective shifts radically and the minutes and hours lose meaning. Has it been three days or a week? A surreal bending of space and time becomes our existence; there is no longer a world outside this place.

My husband won’t leave. By her bedside, he quietly holds her hand as she sleeps fitfully, though it’s excruciating for him to watch his mother suffer. She stirs and asks in a panic. “Where is Steven?” though her hand is still encircled in his, their long fingers cut from the same pattern.

“I’m right here, Mom.” He strokes her cheek with the back of his hand. Reassured, she relaxes back into the pillows.

As the hours drag on, each time she wakes, finding herself trapped in a body wrecked by disease, her anxiety mounts. “Unplug me,” she says, though she is not on life support. With courageous acceptance, Mom is ready to go, leaps and bounds ahead of us.

Soon, the sedatives and pain meds help calm her as the separation begins. She drifts somewhere between here and . . .  not here. She’s stopped talking, retreating. ​

Dad sits on the edge of the bed and leans in close. “You are the love of my life,” he whispers. “You’ve fought so hard.” He brings her hand to his lips, bowing his head.  Sobs wrack his body. “Wait for me, I’ll be there soon.”

I cannot bear it and turn away from the intensely private moment. My hand covers my mouth and my eyes search for my husband’s. We look to his two sisters and an unspoken message travels between; we surrender to the swelling tide of anguish.

The next morning, Traci pushes the bulky hospital bed and the attached monitors and machines away from the wall and angles it toward the window. The rising sun streams in. Peaceful music plays quietly. Tranquility eases the tension for a blessed moment.

With her last bit of strength, she lifts her heavy eyelids a fraction. With incredible will, she lifts a shaky hand off the bed a mere few inches before dropping it. Through the small slits, her eyes are cloudy and seem unfocused. Yet as we watch, we swear her gaze moves slowly from face to face, tracking, lingering on each one of us. An electrical connection pings back and forth. She is here. But she is going. Soon.

It happens in a whisper. Dad and Lori have left, telling her they’re just going to grab some lunch. Kissing her forehead, he says, “I’ll be right back. See you in a minute.”

Steven, Traci and I, continue our watch in silence, together, but apart. Sitting in a chair, I rest my head in my hand and start to sleep, to dream.  For days now, her fight to breathe has become increasingly urgent.  The loud, rhythmic sound churns, a biological instinct for self-preservation. It’s become the background noise, a soundtrack to dying. As I drift further, something pulls my awareness back, as if I’ve been tapped on the shoulder. The lack of the repetitive churning sound slowly enters my consciousness. Then, abruptly, I wake up. Watching, I see her take a quieter breath. Then nothing. Awareness descends synchronously on us all and we spring to the bedside.

We wait and there’s another breath, easier this time.  A pause.  A softer breath, almost a sigh. A longer pause. Then another breath .  .  .  that becomes  .  .  .   her last.

Traci sobs and cradles her mother in her arms. Steven lays his cheek next to hers. I run for the nurse and hear my husband cry, “You were the best mother I could ever ask for.  I love you so much.” Down the hall I hear Traci wail like a child.“You held me when I came into the world and I will hold you as you leave.”

The nurse confirms it is happening and removes the oxygen mask. His hand on her chest, my husband feels her heart stop. We all feel it when she lightly, elegantly lifts from her body and glides away.

 After

An ephemeral gap in the storm appears suddenly, allowing brilliant light to bleed through the wooden blinds and warm my face for a moment before dark clouds converge, a pall returning. I roll over to face my husband.  Eyes closed, he is motionless, yet within, I can feel his disquiet. I sense the vibrations of pain coursing through his body. His mother has died. And where did she go? I can’t find her and it frightens me. She is gone, slipping the surly bonds of earth despite our desperate longing for her to stay. I know she no longer suffers. I believe she’s with the angels now, yet the cavernous void in her absence can’t be quantified.

I cup his cheek and smooth his brow. He opens his eyes to look at me and I see . . .  her eyes. He has his mother’s eyes. I see her in his cheekbones. And in his smile. He has her generous nature and tender heart, too. And brilliant mind. And love of cooking. I’m acutely aware how he came from her.

My spirit soars with this epiphany.  My babies, they came from their father, who came from her. Like Russian stacking dolls, they too, are part of her, shaped by her influence, molded in her image. She lives on within them; everything she was and everywhere she was from.

From small towns and familiar neighbors and grandma next door. From gas at 21 cents a gallon and no indoor bathroom and a washing machine hooked up on the back porch. She was from the chill on a fall morning in Kansas as leaves blew along cracked sidewalks, and from laundry hung on the line to dry in the spring sunshine. From playing board games inside on snowy days and riding bikes outside until dark.

She was from an absent father and an unstable mother. From a younger brother and sister to look after and from growing up too quickly. From babysitting at ten and working at Tasty Freeze at thirteen for $.75 an hour.  From a dance club out of town in an old warehouse and cherry vodka and Jan and Dean and Ricky Nelson.

From an office job at Pittsburg State and a handsome fraternity boy from the university. From young love they said would never last. From a little white house and domesticated bliss and round babies that bounced on her knee. She was from washing dishes and washing out diapers. From friends who became family and raised each other’s kids, who made their own fun on a Saturday night when money was tight.

From the Kool-aid house where everyone wanted to hang out with the mom they wished was theirs. She was from “I’m gonna come down there and spank some butts!” and “Get outta that, dinner’s almost ready,” and “Be home by midnight and don’t drink and drive.” She was from “You can be whatever you want to be,” and “I’m so proud of you.” She was from motherhood first and everything else second.

She was from crockpots and homemade macaroni and cheese and chocolate cake and Christmas braid. From birthdays and Easters and Valentine’s Days cards with cash inside. From shopping year-round and finding the perfect gift for the perfect person. She was from boundless generosity.

She was from cross-stitched samplers and Precious Moments figurines and Longaberger baskets. From Christmas trees in the living room and in the family room and in the kitchen and in the bedroom, decorated with ornaments that aged with her children, each marked with the date and holding the memory of that time. She was from Santas: on the hutch, the shelf, the table and the stairs. Old World Santas, Black Santas, country Santas and ceramic Santas. She was from Santa himself (played by PaPa) coming in through the back door on Christmas Eve with presents for the little ones. She was from trash bags of torn and crumpled wrapping paper and delicious aromas and bellies too stuffed to move.

She was from a house bursting with laughter and life and noise, from her dream of a large family come true. From shouts of “MeMe!” followed by torpedo hugs around the waist. From special weekends and movies in the living room and Barbies and arts and crafts and baking cookies. She was from beautiful hands and gentle touches and soft hugs. From open arms for everyone who crossed her threshold. She was from acceptance and judging no one.

She was from hard work and dedication. From eye-glasses and fittings and appointments and patients and co-workers who loved her, from knowing everyone in town. She was from rising before the sun and falling asleep in front of the TV.

She was from retirement and Grandparent’s Day at elementary school and dance recitals and choir concerts and softball games. She was from best friends and vacations in the Smoky Mountains and Tybee Island and Santa Fe. From two couples, best friends, traveling the country and shopping at the Lake. From coffee on Saturday mornings and growing old together.

She was from signature perfume and Pandora charms and Land’s End sweaters and scarves from L.L. Bean. From new recipes and new bedspreads and new rugs. From gardens and bird-feeders. She was from Mid-West Living and O Magazine. From bookshelves and bookshelves of books. From Kindles and laptops. She was from photos on Facebook and photos hung on every wall.

She was from spending her entire adult life as wife to her husband, for better or for worse, in sickness and in health. From forgiveness and steady calm in stormy seas. She was from dignity and grace and long-suffering.

She was from pink ball caps skewed to the side to cover her balding head and Relay for Life and incredible courage in the fight for her life. From comforting others even at the end of her own journey.  She was from “Everything’s going to be all right,” and “I love you so much,” and “I’m ready to go.”  She was from pure love.*

Memories and impressions of my mother-in-law flood my senses. The sting of death remains, but losing her is impossible: she’s here. My breath rushes in and I’m filled with the Essence of Her Presence. I exhale  . . . then begin to weep. My husband’s arms lock around me quick and tight. Even in his own grief, he understands the depth of mine. He will hold me as long as it takes.

Grief lives in our house, but so does joy. The world without her will never be the same, but the sun will come up and the days will go by. The children will keep growing and a new life will join the family when our grandson is born in a few months as we more to come as we remain a family. We will laugh and celebrate and dream. And when remembrance overwhelms us, we will cry and rail and grieve again. There is no escape. We are powerless to circumvent mourning. I can’t bear it, but somehow I will, by leaning into the grief and feeling it in my bones, by going about living our robust lives and by knowing that the two are not mutually exclusive.

Mom wants us to be happy. She told us that in her dying wishes. She loved the song, You’ll Be in My Heart, by Phil Collins from the movie, Tarzan, which serendipitously came out the year our daughter, Sydney, was born with Down syndrome. The lyrics speak of the protective and nurturing nature of a maternal figure. I think she wants us to know she’s still here, loving us, mothering us. And I believe if we listen, if we just look over our shoulders, we will always find her.

You’ll be in my heart
Always, I’ll be with you
Just look over your shoulder
Just look over your shoulder
Just look over your shoulder
I’ll be there always”

I love you, Mom.

*Format taken from the poem Where I’m From by George Ella Lyons.

16 Comments

Filed under Aging, Enlightenment, Family, Grandparents, Grief, Letting Go, Loss, Motherhood, Siblings

Give and Take

 

handssoft

You are my love and my life.

You are my inspiration.

Just you and me.

Simple and free.

Baby, you’re everything I’ve ever dreamed of.

 Just You And Me by Chicago

 

“Al, I need ice.”

With a white Styrofoam cup in hand, he bends over and carefully spoons ice chips into her mouth, her lips parched and quivering.  A few pieces drop off the plastic utensil onto her collarbone, the skin exposed where the hospital gown has slipped off a bony shoulder.

“You’re not very good at this,” she says weakly. Her breathing is labored and shallow.  The effort of reaching for the ice and talking at the same time is too much and she lays her head back on the pillow, exhausted.

“Well, whatcha gonna do?” He replies good-naturedly.  “I am all you’ve got.”

Quiet for a few moments, eyes closed and very still, she appears to have fallen asleep. But then, my mother-in-law’s eyes open and she answers irritably, “I’m getting somebody else.  You’re fired.”

But, it’s the cancer talking. And the chemo and the side effects and infections that have devastated her body and threatened to defeat her spirit.

As my husband’s father gently wipes away the melted ice, he smiles and croons, “Oh, I’m fired, am I?  Okay, babe.  But I get to interview my replacement.”

For 50 years they’ve faced life side by side.  For better or for worse.  In sickness and in health. Strong when the other is weak, optimistic when the other is sad, calm when the other is upset.  She is devoted to him and he adores her.  Two souls intertwined; theirs is the ultimate love story.

Young lovers can’t begin to imagine what awaits them; that the family born out of their passion will test their resolve and challenge their allegiance, forcing them to redefine love as they know it.

Years ago, when we were young, I married my best friend.  It’s a cliché sung about in love songs and easily dismissed, at least until it applies to you.  However prosaic it may sound, my husband is my partner, in all things.  He is my co-parent in raising our children, he is my intellectual equal, my companion and comforter and confidante.  The love of my life.  He is my home.

Nonetheless, navigating the constant demands of family life takes a heroic commitment and requires a willingness to place another’s needs above one’s own at times, trusting that it will balance out.  Never static, the relationship is fluid, the dynamics ever-changing, and it’s precisely this ebb and flow through seasons of abundance and seasons of bleakness that secures the longevity of a marriage.

Steven and I have been doing this parenting gig for a long time and the truth is we’re tired and we sometimes take it out on each other.  It’s a known fact that parenting children with special needs can contribute to higher divorce rates, though interestingly one study found that in families who had children with Down syndrome the divorce rate was actually lower than in families with other birth defects or no identified disability.  Predictors of divorce among parents of kids with ADHD, however, showed the divorce rate was nearly twice that of the general population before the child’s age of eight.

So, statistically speaking, Haley’s special needs add more marital stress than Sydney’s. I would concur.  Haley brings an energy to our family that is amazing and astounding, but also overwhelming.

Frequently my mind will spiral into panic when tallying what needs to be done, when, how and by whom until I’m convinced that I am doing everything.  Resentment poisons my thoughts and I can’t see clearly.

“Are you okay?”  Steven asks.  “You seem crabby.”

“I’m fine,” I mutter, crabby that he called me crabby.

And when my husband’s frustration mounts, his accumulating stress has nowhere to go but outward.  His patience is depleted; he is not pleasant to be around.  “Leave Daddy alone,” I tell the girls, giving him a wide berth.

Inevitably in marriage, storms hit.  Some hard.  Rain falls heavy and saturating until we can no longer buoy the other up.  A drowning person cannot save another drowning person.  Misunderstandings, unspoken expectations and harsh words flood and we are in danger of being swept apart by the current.

But gratitude is the ballast that holds fast, and forgiveness the rope that leads us safely back to each other, hand over hand.

At the end of long days I reach for my tall husband as he walks into the kitchen and wrap my arms around his waist.  It takes only ten seconds to feel the bands around my chest begin to loosen.  He rubs my back.  I close my eyes and breathe.

Then, I feel Haley dive between us, using her body as a wedge to leverage us apart, making a parent sandwich of herself.

“Group hug!” she yells, her voice ringing through the kitchen.

And . . . the moment is over.

Yet within this chaos of everyday life, our love solidifies into an unbreakable, brilliant diamond; under pressure, the mundane is transformed into the extraordinary.

I watch him from across the room when we’re enjoying the company of friends: the expressions I know so intimately; the way his lips curve up at the corners, showing his gums when he smiles; his eyebrows, animated when he talks, and the dimples that mesmerized me when we first met, still flash when he laughs.  Not as young now, but our life is written on his beautiful face.

He stands with one foot on the low rung of a stool, his legs long in slim jeans, sporting a graphic t-shirt and trendy glasses, holding a craft beer in one hand and gesturing with the other as he converses.

I fall in love all over again, but harder.  I see not only an attractive man, but a man who fixes my computer, and makes me laugh, and runs through the mud in a Viking helmet with me.  I see a father who camps in the backyard with his girls, and teaches them about fish and birds and nature, who strokes their cheeks tenderly with the back of his hand when he puts them to bed; a father who endures long hours, sacrificing his own leisure so he can pay insurance premiums, mortgages and college tuition, who generously provides the good things in life for his family, who gives and gives and gives and gives.

I hear not only his voice, but the clang of a lug wrench on concrete as he replaces the brakes on my car, the rhythm of the washing machine as he does 52 loads of laundry, carefully separating my Lululemon to hang-dry.  I hear the soft click of the bedroom door as he tiptoes away on a Sunday morning, letting me sleep.

He feels me staring and turns.  “I’ve got you,” I say without speaking when our eyes meet.  “I’ve got you,” he answers.

Ours is an ultimate love story.  Tested and true, redefining love as we knew it.

Like my parents-in-law.

Love is sleeping on a roll-away bed in a hospital room, an arm’s length from his wife.  Love is fighting the battle of a lifetime, with unending courage so she can stay longer with her husband.

“I was supposed to have more time,” she sighs.

“You’re not dying today,” he answers.  “Not today.”

Leave a Comment

Filed under Aging, Family, Loss, Marriage, Parenting