Tag Archives: parenting

Resurgence of Hope

You do not have to be good.
You do not have to walk on your knees
for a hundred miles through the desert repenting.
You only have to let the soft animal of your body
love what it loves.
Tell me about despair, yours, and I will tell you mine.
Meanwhile the world goes on.
Meanwhile the sun and the clear pebbles of the rain
are moving across the landscapes,
over the prairies and the deep trees,
and the mountains and the rivers.
Meanwhile the wild geese, high in the clean blue air,
are heading home again.
Whoever you are, no matter how lonely,
the world offers itself to your imagination,
calls to you like the wild geese, harsh and exciting
over and over announcing your place
in the family of things.

Mary Oliver, Wild Geese

I read once that Canadian geese are monogamous, that most couples stay together all their lives. Considering the brutality of life in this wild world, I find that to be an inspiring example of devotion, applicable to the human condition, particularly in our postmodern reality.  

My husband and I have, on day 13 of the COVID-19 quarantine, brought our two goslings out to the country for a change of scenery. This is our fourth spring out at the farm. Well, that’s what we call it. Although we raise no livestock nor harvest any crops, my husband and I christened the 22 acres we bought in the rolling countryside of Steedman, Missouri “the farm.” 

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Filed under Babies, Family, Gratitude, Grief, Loss, Marriage, Motherhood, Pandemic

Just Breathe

Re-posted from March 6, 2014

“I took a deep breath and listened to the old brag of my heart.
I am, I am, I am.”

Sylvia Plath

There’s a stillness that descends on the hospital late at night, softening the harshness of bright lights and the sterility of hard floors. Sounds are muted and voices are hushed. Sydney is the only patient in the sleep lab tonight located at the end of a long, empty corridor. It’s dark in her room but for a night light and the glowing dots of the medical devices she’s hooked up to. I shift uncomfortably in the reclining chair next to her bed and wonder how I’ll make it until morning. It occurs to me that my father-in-law spent more nights this way than I can count during the fourteen months of my mother-in-law’s battle with cancer. It also occurs to me that the last time I sat in the dark next to a hospital bed was with him, the night before she died.

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Filed under Childbirth, Down syndrome, Family, Gratitude, Letting Go, Loss, Motherhood, Parenting, Special Needs

Depth of Field

It’s a gorgeous spring day on our 22 acres outside Fulton, a brocade of rolling green set against a periwinkle sky. It’s where I come to breathe. Today all four kids, their families, plus my dad and sister visiting from out of state are here to celebrate. Four generations together, a rare treat. I’m relishing every idyllic minute. The afternoon, spent fishing, exploring, hiking, and picnicking, is nearly over before I remember the photo.

“Hey, you guys!” I say, calling everyone in. “Let’s get a picture under the big tree.”

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Filed under Adolescence, Aging, Babies, Family, Grandparents, Growing Up, Letting Go, Memories, Parenting, Siblings

Coming Home

Ethan and Sydney at the magic moment

The night is a pleasant 68 degrees, but heat emanates from the bright stadium lights, and I’m damp beneath my Rock Bridge High School T-shirt. My boots clink on the aluminum steps as I climb past the student section and up the bleachers. A few people in the stands wave and others call out “Good luck!” I slide into the seat my husband, Steven saved for me while I helped our daughter, Sydney, execute the night’s events. ​​

“She’s ready,” I say, glancing at the scoreboard. A minute thirty left in the half. Steven pats my leg.

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Filed under Adolescence, Aging, Down syndrome, Family, Gratitude, Growing Up, Letting Go, Motherhood, Parenting, Special Needs

A Good Enough Mother

The words are sharp, a staccato litany of frustrations ricocheting around the room. They’re mine, directed at my misbehaving teenager. Adrenaline shoots through my veins. Careful, I think, sucking in a breath, holding it. The silence echoes loudly. In my head, the diatribe continues.

Shhhh, a gentle voice says. Stop now.

My youngest stands in her pjs, ten feet away in the darkened kitchen. Backlit by the hall light, she’s small for fourteen, but contrition renders her smaller. The fire has gone out in her eyes.

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Filed under ADHD, Adolescence, Aging, Babies, Family, Growing Up, Letting Go, Motherhood, Parenting

Exquisite Grief

And when she shall die,
Take her and cut her out in little stars,
And she will make the face of heaven so fine
That all the world will be in love with night
And pay no worship to the sun.

William Shakespeare, Romeo and Juliet

And now it’s happened: I’ve lost my mother. She laid down her broken body—soft and comforting still, but no longer up to the task of moving her through the days — and died. She laid down her weary head, the short-circuiting neurons in her brain finally quiet, and slept.

In her own bed, under her lovely floral quilt, she drifted away and left physical concerns behind in the vessel housing them. Her breathing stretched, the silence between each ragged inhalation hung with anticipation. Her pounding heart slowed and faded to a quiver, like the fluttering wings of a little bird, until it beat no more. My sister quoted Shakespeare: “To-morrow, and to-morrow, and to-morrow, creeps in this petty pace from day to day.” For Mom, the pace has ceased its forward motion; there are no more tomorrows. And in retrospect, the petty becomes hallowed. “Out, out brief candle! Life’s but a walking shadow . . .”

I knew it was coming, or rather, that she was going. For months, I mourned her absence even in her presence, trying to absorb everything and indelibly imprint her image on my memory. The days, finite and measured, poured like sand through the hourglass as I watched them go. I knew I would lose my mother, but I didn’t know it would bring me to my knees.

I didn’t know how heavy grief could be, that I’d drag myself under its weight from my bed each morning, pulled into motion only by the slipstream of routine. Even then, fatigue would leave me to endure the hours until I could curl up again, alone. I didn’t know the world would be too loud and too bright and too fast, its audacity for going on as if the cosmos hadn’t shifted unforgivable. I didn’t know I’d hide from my neighbors or seek solace nightly in wine or toss and turn restlessly in my sleep, dreaming of something just out of my grasp. I didn’t know it would feel like depression.

I didn’t know it would hit this hard, losing my 71-year-old mother to multiple sclerosis. I didn’t think I was entitled to the same bereavement as my friend who lost her 21-year-old son, full of potential, to a heroine overdose; or my friend, whose 5-year-old grandson was taken by a brain tumor before his life had even begun; or my sister, whose husband died of kidney cancer when he was 47, leaving a young son fatherless. Because Mom had been ill for decades and because I’d planned for the end of her life, because she’d become increasingly distraught and difficult, because she suffered, because she was at peace and ready, because I believe her death to be merely a transition—for all these reasons I thought my sorrow would be tempered. I know now, it matters not if the death is tragic or abrupt or expected, if the life has been long or interrupted; grief pierces and reverberates through all who have loved and lost.

I didn’t know it would lodge in my body, that I’d tamp down and swallow my emotions. That staying busy would be a coping mechanism. That avoiding reminders and seeking distractions would keep me functionally numb, but one handwritten note could unravel my hold. I didn’t know it would be a physical urge, this need to cry, and when unleashed, the intensity would crash over me in waves, plunging me under and washing me to shore only when the tide went out. I didn’t know I’d be a private mourner, that I’d get through the memorial with only a few tears, but in the dark of night, in my husband’s arms, I’d finally weep unabashedly, like a child.

I didn’t know people could show such tenderness, that when I returned home I’d find my friends had cleaned my house and left plants and flowers and cards and nourishing food. I didn’t know their generosity would humble me profoundly, that every thought and prayer, every gesture, every act of service would soften the pain and blur the edges.

I didn’t know I could miss my sisters so terribly, the airport goodbyes a severing. I didn’t know we would merge into the embodiment of the best of our mother, that separation would feel unnatural, impossible even. I knew the sacred experience of nurturing the exodus of our mother’s spirit from this world would bring us closer; I didn’t know escorting her body under a full moon to the teaching hospital where she would donate her brain for research would be just as holy.

I knew we’d draw comfort from each other, but I didn’t know heaving sobs punctuated by belly laughs could be so cathartic, that the somber ceremony of scattering her ashes at the ocean’s edge on a cold, overcast day could suddenly turn uproariously funny when one sister, attempting a dramatic toss into the wind, tripped and fell into the freezing surf. I didn’t know we would celebrate our mother’s magnificent life with champagne toasts, crying as we sang along to Helen Reddy and Anne Murray and Karen Carpenter.

I knew we were strong women, that working hard was inextricably woven into who she raised us to be. But, I didn’t know we could clean out her apartment in 3½ days, a whole life summarized in the boxes we carted to my sister’s garage. I didn’t know evidence of Mom’s bravery and integrity would manifest in the intimate task of settling her affairs; not only proof of her creative, tenacious resilience—the hallmark of her personality, but also, signs of her mental decline no one could see.

I knew she was loved by many, not only friends, but those to whom she bonded with fierce loyalty, her chosen family. I didn’t know I’d dread the task of calling each one to deliver the news, that the words would stick in my throat. I didn’t know that their lives would also be bereft without her and I’d be compelled to comfort them, even as my own heart was breaking.

I knew the daily texts would stop, that I wouldn’t hear her voice exclaiming, “Hi, honey!” on the other end of the phone, that when she came to visit it was the last time. I didn’t know when I logged into her account and shut off her electricity the sudden realization of its permanence would take my breath away. I didn’t know I’d question if I should have done more and agonize over whether I’d been enough. I didn’t know I’d ache for her forgiveness.

I knew she’d stay close, that we would feel her; I didn’t know she would come to me when I was exhausted and spent, in the dream-like trance of half-sleep, and spread comfort like warmth through my chest, or when I was quiet and contemplative, in a cool breeze, gently caressing my face and answering my question, “Is that you, Mom?”

I didn’t know the previous contentment with my pretty little life would now feel like complacency; that restless whispers would become clamoring discontent, catapulting me into change and insisting I choose a different path. I didn’t know this transformation was not hers alone; it was mine as well. I know now I’ll never be the same, but therein lies the gift: the pain that shattered my carefully crafted day-to-day, leaving me to ponder my purpose and revisit the very meaning of my existence, has allowed me to create the reality I was born to live.

I know now losing my mother hurts like hell; her absence incarnate is like a light gone out and it will be dark for a while. But in the darkness, I awaken. Holding hands with divinity, I glimpse that I, too am divine. My loss is not diminished by this blissful epiphany, and surprisingly, I’m glad. I don’t want its sharpness blunted. I welcome the overflowing experience, brutal one moment and glorious the next. I did not know, I could not know I would cherish my grief, a grief made exquisite because I loved her so. As I love her now. As I will forever more. This I always knew.

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In Her Image

Sometimes I feel like a motherless child
Sometimes I feel like a motherless child
Sometimes I feel like a motherless child
A long way from home

African-American Spiritual

Katie Lyman
Age 20, circa 1933

I’m going to lose my mother. It’s an inevitability I never used to think about. My grandmother, Katie lost her mother in 1920 when she was only seven years old. She was the second of five children and the oldest daughter. Separated by scarcely more than a year, the first three were born before her parents divorced. Her mother remarried and after a four-year gap, two more babies were born in quick succession. Katie’s stepfather moved the young family from the city to a rural farm in Wyoming when the littlest were two and one and her mother, Loretta, was eight months pregnant.

My Grammy wrote in her memoirs, “I remember snatches of my mother. It seemed she never sat down at the table because she was always waiting on we kids and Papa.” From my 21st century vantage point, I can only imagine how exhausting and laborious this 24-year-old mother’s life was, raising five small children on the prairie, without modern conveniences, while pregnant. Again. Before they were settled in the new homestead, Loretta’s sixth child was stillborn. Flooding prevented the doctor from reaching her, though we can’t know whether it would have made any difference. She became very ill in the days following but managed to send a letter to her mother, Tennie, saying the baby had died but she ‘supposed she’d be all right.’ Without the convenience of modern technology, that letter didn’t arrive until 2 weeks later, and on the same day as a different letter which carried the news that her daughter had died.

In Katie’s words, “. . . [they] took her to town in a spring wagon with a bed made in it. It was the last time I saw her alive. She said, ‘Goodbye kids. I’ll be back in a day or two.’ I had such an empty feeling. I went behind a tree and cried.”

I was 18 when I left home for the first time to attend college and I missed my mother, Patricia, deeply. A vocal music major, I sang with an elite a cappella choir. Every day at 1:00 pm we rehearsed, our voices painting tonal landscapes in which I lost myself. The eight-part harmonies of “Sometimes I Feel Like A Motherless Child,” wrapped around me as the haunting melody, in a minor key, wept with visceral sorrow, expressing the universal loss; a child without its mother. I was reminded of my grandmother and how she was set adrift so young, alone in the world without an anchor to keep her safely harbored. I wondered, what happens to a girl when her mother dies before she’s become a woman herself. How does she know who to become? And who will show her who she already is? A mother shapes her daughter by simply being. Not nature verses nurture; the unfolding lies in both.

There is something profound in the biological connection between a mother and her daughter that transcends the quality of their relationship or the amount of time spent together. The genetic design that serves as a blueprint for the subsequent generation exists despite circumstance. Daughters can sculpt themselves, choosing how they manifest their best potential, but DNA maps their identity; the double helix provides the framework on which they build themselves. We emerge from those who come before us, carrying their pedigree within; there is no escaping our lineage.

At times, I’ll admit, this is the very thing I’ve rejected—the sameness. When face-to-face with the likeness, I balk and break away, accentuating my difference: I am my-SELF, not a copy of my mother and aunts and grandmother. And yet, at other times, I embrace my tribe with pride and solidarity; the familiarity claims me and I cannot deny my own belonging.

My life unfolded with similar patterns to my mother and grandmother. My grandmother was the eldest daughter. My mother was the eldest daughter. I am the eldest daughter. My grandmother had three daughters and one son, and her youngest, a daughter, was born when she was 40. My mother has three daughters and one son. Her youngest was a daughter, born when she was 40. I have three daughters and one son, and my youngest, a daughter, was born when I was 40. And we have more than numbers in common. We come from strong women; pioneer stock with do-it-yourself independence. We come from mental illness and trauma and divorce. We come from creativity, talent and passion, fiery tempers to match. We come from tender hearts and soft bodies and soothing hands.

I am my mother. I am not my mother. I want to be like my mother. I want to be nothing like my mother. All are true. And one truth remains superlative, no matter how old, we need our mothers; as babes and teenagers, as young mothers ourselves, as aging adults. To be nurtured and comforted, to be cherished and reassured; these are needs we do not grow out of. The simple presence of one’s mother on the planet provides the possibility of a light in the darkness. And regardless of conflict or resolution, intimacy or estrangement, issues past or present, in the end, forgiveness clears the space for only love to remain.

When Katie neared the end of her life she said to her daughter, “When I can’t live alone, will you come and get me?” And Patricia–my mother–did.  Instrumental in the sacred metamorphosis, she gently ushering her mother out of the world, just as her mother did, bringing her into the world.

It’s nearing the end of my mother’s life and the loss has already begun; the grief is nudging me, whispering. A mother’s first instinct is to shield her child from pain, but she cannot shield them from the pain of her own death, try as she might. I’m going to lose my mother, and soon, yet I feel the stirrings of my ancestry lending me strength. I sense the circle of grandmothers bringing me peace. Tennie, mother of Loretta; Loretta, mother of Katie; Katie, mother of Patricia; Patricia, mother of Lisa; we are linked, one to the next, and an unspoken knowledge pulses between us: a mother cannot be lost. She is connected to her children forever. Wherever we go, we carry our mothers with us and we are never far from home.

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Enough

I actually did it. For once I followed through on a threat. I’ve battled my children for years — no, decades — over the condition of their bedrooms. When the eldest two were teens, I all but conceded the fight. Their dark, damp rooms devolved into giant petri dishes, emanating mysteriously mingled odors. Clothes covered the floor, and dishes littered every surface; drinking glasses half-full and film-covered, cereal bowls congealed with the remnants of sugary milk, plates smeared with dried-on leftovers. Trash and treasures alike were shoved into nooks or carelessly strewn about, unprotected, revealing a laissez-faire attitude toward expensive teenaged paraphernalia: Game Boys, skateboards, headphones, stacks of loose CDs. The horrific messes frustrated me, but my kids taking everything for granted, that disheartened me. The situation resolved — when they moved out.

I can’t wait that long with the second batch. I’m old and basically one apoplectic fit away from a heart attack. I vowed things would be different and set out with two basic tactics: 1) Stay on top of it; get organized and maintain order, and 2) Teach them to be respectful; expect responsibility and reward compliance.

Mmm-hmm. Yeah.

I organized the play room with color-coded tubs on corresponding shelves. I arranged drawers, cabinets and cubbies. I used LABELS. “A place for everything and everything in its place,” I intoned, and for whole hours at a time their rooms looked like a Pottery Barn catalog — such a sweet sensation! But there was no way I could keep up the relentless policing and cajoling and reinforcing. Even with control issues, I was no match for the destructive force of my children. When I let down, even a little, it all went to hell in a hand basket; the little monsters annihilated my beautifully orchestrated design. Their energy was tornadic — toys, games, books and dolls were flung everywhere. And all those tiny pieces — broken crayons, Barbie shoes, key chains, pennies, paper clips, empty wrappers from Halloween candy and crunched-up chips smuggled in and hidden under the bed. The wreckage sent me into my own tailspin.

 

Prolonging the inevitable, I’d shut the door and walk away. I did not want to see it. Eventually I’d muster the strength and supervise the restoration of order by the demolition crew themselves. And by “supervise” I mean losing patience with their lackluster, apathetic efforts and cleaning it all up myself as they stood by, repentant and cowed into silence by my ranting.

“Look at all this stuff! It’s too much. Seriously, if you girls cannot change, you are destined to become hoarders. You’ll live alone!”

This cycle has repeated itself ten-thousand times, but the last time was different. I was different. I had enough.

“That’s IT. I am DONE! I’m NEVER doing this again. The next time you leave your things all over your room, they will BE. GONE. I MEAN it. I’ll come in here with GARBAGE bags!”

They didn’t believe me, but it was no idle threat; I followed through. Well, Steven did. My husband seemed to think I’d back-pedal, so he waited until I was at work to do the deed.  I came home to 12 heavy-duty black bags sitting in the garage where I park my car. And an empty play room. Epic in scale, their messes flat wore me out, but it was what those messes said about my kids that truly bothered me. It said they don’t appreciate what they have, that they are used to getting what they want; they’ve certainly gotten anything they’ve ever needed. And they don’t value it or the hard work and money it took to purchase their luxuries. As a parent, it’s a hard truth to face: having more than enough has not made them grateful, it’s made them greedy. And I’m to blame.

When we were in high school, my brother, sister and I lived with our single mother in a double-wide trailer. Parked on farmland in southeastern Idaho, we hunkered down for subzero winters and dug ourselves out of snow that began in October and stayed until April. To fight off the brutal cold, we fed a wood stove throughout the night and burrowed into heated waterbeds. My brother and I drove our one car to school after we dropped off our mom at work. Our clothes came from K-Mart, our furniture from thrift stores and when we worked potato harvest, our wages went to the household rather than in our pockets. I got good at pretending I wasn’t hungry on Friday nights at McDonald’s with my friends.

When I became a mother, I wanted my children to have what I didn’t, but in filling that void, maybe I denied them the opportunity to develop something I did have, in spades: a work ethic and sense of responsibility, an appreciation for material things and what it takes to earn them. Gratitude. Perspective. In hindsight, while they were tough, those experiences made me who I am today.

At Christmas, especially, when the anticipation of presents dominate my young daughters’ thoughts, when the reason for the season is buried under retail consumerism and drowned out by advertisements of aisles and aisles of bright, shiny treats, I grapple with how to adjust their attitudes. I long for them to recognize their bounty and share it freely with those in need. At heart, they’re not selfish. Sydney is so sensitive to other people’s feelings and generous. She has literally tried to give people the shirt off her back — or the iPod in her hand. And Haley, who has a special love for little ones, latches on to anything about sick kids. She filled out a donation slip for St. Jude Children’s Hospital and tucked $15 of her own money inside, asking me to mail it for her. My girls are kind and compassionate; they just need a chance to express it. And I need to lead the way.

Where to start? The world is full of hunger and pain and loss — the need so great. What could we do that would make a difference? The answer is simple: Whatever you can give, give. Whatever you can do, do. Mother Teresa said, “If you can’t feed a hundred people, then feed just one.”

In Columbia, you don’t have to look far to find ways to give. Organizations such as The Food Bank for Central and Northeast Missouri, Rainbow House, Coyote HillTrue North and Harvest House are among many worthy causes working tirelessly to serve humanity. Technology makes it possible to impact lives globally as well as locally. One mom I know coordinates an annual packing party for Operation Christmas Child, sponsored by Samaritan’s Purse, an international relief organization. This year, I took the girls. On a Friday night, we gathered to fill shoeboxes with school supplies and hygiene items, socks and hats and flashlights. And toys, of course: dolls, trucks and stuffed animals; things that will surely become prized possessions rather than yet another plaything to be taken for granted. Packing the boxes full, Sydney and Haley topped them off with handwritten letters and their school pictures to add a personal touch and sent them winging their way around the world to be received by children who might not have access to clean water or health care, let alone presents on Christmas Day.

By giving their hearts, my girls realized it’s not about the stuff, and in fact, excessive stuff gets in the way. Material things are not what bring us happiness. Connection, service, love: These are the gifts I want to give my daughters, and the knowledge that they can make a difference themselves, right here at home and across the universe.

So far, it’s sticking. Greed is giving way to benevolence. We’ll keep it up, finding opportunities to reach out. It is far better to give than receive, and they know that now.

The bags containing evidence of their overabundance sat in the garage for a few weeks, giving them plenty of time to think and allowing them to discern what they cherish, what they appreciate and what they can let go of. And in the process, they learned how good it feels to have, not too much, but enough.

 
 

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Filed under Adolescence, Babies, Christmas, Family, Growing Up, Motherhood, Parenting

Becoming

I love teenagers. I do. Everything about them: the awkward, the self-conscious, even the angry bits. I’m especially intrigued by the way they shed their childhood like a skin and emerge a newer, older version of themselves. I even kind of love parenting teenagers. I know–it sounds nuts, but I feel I hit my stride as a mom when my kids hit double digits.

My babies slathered me with sloppy, open-mouthed kisses and clung to me like monkeys with their dimpled fingers; their miniature selves extensions of my body, not quite separate. Pressing them, sweet smelling and downy to my chest, was intoxicating. It comforted me as much as them. But there was the sleep-deprivation and the crying and the poop. So much poop. Not my fave.

My toddlers left sticky handprints on the walls, dropping crumbs in their wake and careening clumsily through our days, insisting loudly, “No, I do it!” Mini-tyrants, they asserted their independence and in conquering their world, dominated mine. Adorable to grandmotherly types who no longer dealt with blow out tantrums and whole gallons of spilt milk. Pass.

My preschoolers asked thousands of questions starting with “Why . . . ?” Insatiably curious, they chased sensory input with the sole purpose of soaking up knowledge . . . and destroying my house. Their constant motion and boundless energy siphoned me dry. Plus, the requisite mommy activities filled me with dread: crafting was code for a special sort of hell surrounded by Elmer’s glue, paper plates, and a million tiny beads. Not my best skill set.

In elementary school, baby-fat gave way to long legs as my kids morphed into capable young people with new skills and talents. They lived large and played hard and the noise threshold hovered around ear shattering, leaving me slightly deaf and functionally catatonic. No thanks.

By pre-pubescence, mysterious internal stirrings accompanied outward signs of impending change. On the cusp of a developmental leap, my children remained child-ish, but their sense of savvy and street smarts emerged. Thinking for themselves and testing limits, their personalities started taking shape and I enjoyed their unique brand of humor and conversation. All in all, a delightful stage, except for the hygiene: showers, toothpaste and clean underwear — not even on their radar. Getting closer.

With full-on adolescence, things got much more complicated; the physical work of parenting shifted dramatically to mental stress and strain. I expected the hormonal mood swings, the acne, the shocking growth spurts and voice changes, but I did not foresee that while their bodies mimicked adulthood and their psyches masked a false bravado, their brains — and hearts — remained immature and thus vulnerable. They were babies in grownup bodies, but I loved being with them. My goal was to keep them talking. I believed that communication was key to navigating the rough waters of parent-teen relationships and in my book, we succeeded. They felt safe enough to come to me with anything. Well, ‘aaaal-most anything.’ This according to my husband.

Don’t get me wrong, it was no nirvana, and I will state for the record, sometimes it was God-awful. I was certain we’d be swept under by those rapids, but we made it. And over the years, the intensity has faded — ironically, not unlike labor pains — and what lingers are gratifying memories of my older children becoming the smart, funny, compassionate and talented individuals they are today. With the age difference in our kids, it’s two down, two to go.

Now Sydney, 15, the older of the second batch, traverses the current. At schedule pick-up walking the halls of the high school, crowded with teenagers a full head taller than my petite daughter, I follow behind, watching her stride confidently down the corridor. I feel an acute sense of poignancy so sharp it’s almost painful: my girl, who happens to have Down syndrome, is a freshman.

While it’s true that many people with intellectual disabilities will retain child-like qualities, they do mature mentally, physically and emotionally. Sydney initially resisted the changes to her body. “I don’t want to become a woman!” she cried. But with the onset of her cycle, she’s embracing her new place among the women in our family and wants to share the news. With her trademark lack of self-consciousness and social decorum, she makes random comments — in public, no less. “I’m wearing a new bra!” and “Me and Mom are growing boobs. We’re boob twins.”

Sydney is intuitively aware of her disability and how she fits into social manueverings. As a cheerleader, she has an opportunity to ‘belong,’ but her success depends on me going to practice with her. I learn the routines and then teach them to her; practicing over and over and over. I’ve not always been cheer-ful about doing it. More than once I thought it was too much, for both of us. However, I also know she’s competent — she can do it, I’ve seen her! Despite the sighing and the tears, it’s worth it to see her achieve, on her own merit. Besides, she looks darling in her uniform.

Raising kids requires discernment about when to protect and when to prod, when to hold back and when to let go. With special needs kids, it’s easy to err on the side of caution and unintentionally block their progress. Sometimes we just need to get out of the way.

Like hatchling chicks, adolescents gain strength by breaking through their shells, earning a resilience they’ll need to live on their own. In many ways Sydney is a normal 15-year-old who loves YouTube and shopping and Taylor Swift and pizza parties. A teenager who rolls her eyes and says, “Mom, you’re ‘bare-assing me!” Who wants a phone and her own room. And a boy friend.

Being a mom to teenagers is the ultimate exercise in frustration, but I kinda love it. Sydney has begun the trek to independence and her sister, our last, is not far behind.

A few nights ago, Haley, age 11, came out of her room sobbing, during the scarce quiet time between the girls’ bedtime and our own. From my seat on the couch I watched her make a beeline to my husband, Steven, who stood in the kitchen. She wrapped her arms around his waist and buried her face in his belly.

“What’s the matter, love?” Daddy asked. “Did you have a bad dream?”

She cried and mumbled something incoherently.

“Sweetie, I can’t understand you,” he said, bending over and untangling her from his torso.

Pulling her head back and wiping her nose on his shirt, she took a deep breath and wailed, “I’m crying but I don’t … know … why!” and collapsed into fresh sobs.

He rubbed her back sympathetically, but looked to me helplessly, raising his eyebrows and shrugging his shoulders as if to say, “Um, what do I do with this?”

“Come here,” I said soothingly and stretched my arm out. She settled into my lap, curling into my body as I stroked her hair. “Chickadee, I know exactly how you feel.”

Some things, we don’t grow out of.

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Filed under Adolescence, Aging, Babies, Down syndrome, Family, Gratitude, Growing Up, Memories, Motherhood, Parenting, Special Needs

And Miles To Go Before I Sleep

It’s morning and I awake, not to an alarm, but to bright sunlight streaming through a crack in my door. Cradled maternally by my mattress, I’ve slept so hard the sheets have left deep creases on my skin. My consciousness attempts the swim  through layers of fog; “What day is it?”  “Where, exactly, am I?” With great effort, I roll over and squint, reading the digital numbers on the bedside clock: 8:29 a.m. The house is quiet; no one’s up yet.  And I remember: there is nowhere we have to be! Two months into summer vacation and today is our first free day — no camp, no summer school, no nothin’. I sink back under the delicious covers. In a few minutes Sydney and Haley will be ransacking the kitchen, eating peanut butter out of a jar and reheating chicken nuggets for breakfast. But I don’t care.

I love my bed and I’m not ashamed to admit it. Just the thought of my comfy pillow-top soothes my strung-out mind. This bed knows the contour of my body and calls to me seductively, “Lisa, come lie down.” And I do, whenever possible. Late afternoons, especially, once I am horizontal, I’m gone. People who nap are lazy, I used to think. Back then I was judgmental and more than a little pious. Back then I had yet to become a mother.

Almost 30 years later, I can’t remember the last time I felt rested. Child-rearing and chronic fatigue go hand in hand like hot wings and heartburn. As a new mom, sleep-deprivation on the level of Chinese water torture started when my first adorable but very loud newborn arrived and immediately took all nocturnal activities hostage. My initial resistance to being jolted out of an altered state turned to incredulity when I started to realize  I would be sleep-walking through life long after 3:00 a.m. feedings ceased. The epiphany was driven home after it was too late, after I chose to have more kids at an ‘advanced maternal age,’ thus clinching the deal: I’ll rest when I’m dead.

Facing this reality is much like processing grief; it comes in five stages: denial, anger, bargaining, depression and, finally, defeat. I mean, acceptance. The stages aren’t always in that order and some resurface frequently. Like bargaining. Especially bargaining. We all know one should never negotiate with terrorists, even if they’re tiny.

But in our defense, they’ve worn my husband and I down over the decades, reducing us to desperate acts committed in exhaustion-induced delirium. “Will you lie down with me?” they ask.  And we cave, letting them snuggle up as we read a story, fighting to keep our eyes open, but four hours later we wake with a start, fully clothed and drooling.  Or worse, we let them into our bed. But that, my friends, is a trap. All angelic with the gossamer eyelashes and the delicate skin, they curl up close, their soft breathing rhythmic and hypnotic. They lure us in and lull us to sleep in the sweetest of embraces. Bliss descends. For about 5 minutes.

What follows can’t really be called sleep; collapsing into a coma only to be startled awake by a sharp knee in the shin or a sudden slap across the face. Through the night, they migrate across the bed’s surface. Rooting like baby pigs, they thrash and turn, never still for more than a few moments. Heat-seeking, their little feet reach for the nearest body part. The broad expanse of Daddy’s back makes a good target, right between the shoulder blades. By morning, the bed resembles a war zone, the blankets wadded and twisted or in a heap on the floor.

The family bed is a myth. It’s actually more like musical beds. At some point the willingness to do anything for a good night’s sleep overtakes good judgment. Dad often is exiled from his own bed. Gone in search of a place to land, he ends up downstairs in the guest bed, or on the couch, or in a bunk bed, wedged up against the wall, his 6’3” frame contorting to fit — or not — the twin mattress with twin-sized blanket and not-so-clean twin sheet that slides over the protective plastic liner.

My poor husband is a character from Dr. Seuss’ “One Fish, Two Fish, Red Fish, Blue Fish.”

“Who am I? My name is Ned. I do not like my little bed. This is not good. This is not right. My feet stick out of bed all night.”

He’s been displaced so often the girls refer to the master bed as “Mommy’s bed” and frequently hit me up to fill the vacancy.

“Can I sleep with you tonight?”

“No, Daddy is sleeping with me. In his bed.”

I should be grateful that only 50 percent of my children are difficult sleepers; in each of the two sets, there is one good sleeper. Of the first batch, Melissa was the one, sleeping like a dream and waking up happy and contented. Jeremy, not so much. He was never easy; putting up the good fight at bedtime and waking hyper or cranky. He ran on two speeds: turbo-charged or out. Constant ear infections caused him to wail in pain for hours, always in the middle of the night. I remember rocking him, both of us drifting off just as the sun came up. He never learned how to get to sleep by himself and for years, though he’d start out in his own bed, morning would find him on the floor next to my side of the bed.  I stepped on him more than once.

With this second round of kiddos, Sydney’s the piece of cake. The cliché that kids with Down syndrome are good sleepers is true. As a baby she would lean out of my arms and reach toward her crib at nap time. As a teenager she says, “I’m tired. I’m ready for bed, Mom,” and down she goes. Mornings start with a hug and a shy smile and flow from there. Easy.

Haley couldn’t be more opposite. Bedtime drags on interminably: She’s thirsty, her head (throat, foot, bottom) hurts, she doesn’t have the right pillow, she’s too hot, too cold, her nose is stuffed up. She can’t sleep. She can’t stop thinking. She’s excited, she’s sad, she’s needy. “Mommy, I want you,” she says, reaching her arms out, fingers clutching. “I haven’t spent any time with you!” Steven calls her a little tick.

But see, I need to count on my children being unconscious for some amount of time during each 24-hour cycle.  With a child like Haley, there is no such respite. She comes stealthily into our room, appearing suddenly at my bedside, her hand like a woodpecker tapping my shoulder. “I had a bad dream,” she whispers loudly. Or sometimes she just climbs in over us; jostling the whole bed and wiggling her way to the middle. A few times she walked in and  flipped on the overhead light.

Though our older children eventually grew out of sleep disturbances, my weariness remained; the cause merely shifted. Teething and nightmares and the sudden onset of stomach flu at 1 a.m. morphed into loud music and late-night phone conversations and the unbidden images of worst-case scenarios 30 minutes past curfew. Anxiety and stress and overwhelm continued to plague my dreams as they became adults and headed into the wide world. Now, they’re having babies of their own; more  worry  to steal my sleep. There’s no going back; parenting is a long-term gig.

Coffee is my salvation in the morning and a glass of wine in the evening, a reward for making it through the day, helps me unwind. But the cycle sometimes leads to insomnia, the most maddening affliction – when the children are finally sleeping, I lie wide awake, completely and utterly spent, yet unable to let go. And if I’m perfectly honest, there is, as well, the self-induced lack of sleep; the time I carve out of my repose, because, by damn, I must have some to myself! I set my alarm for 4:00 a.m. to teach a 5:30 a.m. class, sacrificing the extra Zs so I can meditate and prepare, unhurried and in peace. I stay up late, until 2:00 or 3:00 a.m. to write, because the house is quiet then and I am, at last, alone.

The other day I ran across my old journals from the mid to late-80s. Steven pulled down a few dusty boxes from the attic and as I paged through entries written by my much younger self, I was intrigued, as if observing someone else’s life. The narrative was passionate with a tendency for the dramatic and the words that emerged repeatedly were, “tired,” “exhausted,” “overwhelmed.” If I could, I would say to that young woman, “Honey, you’re going to be tired for a while – it comes with the job – but you’ll be all right. Take really good care of yourself; it’s crucial if you are to go the distance. Rest when you can. Take naps (it’s not lazy). And remember the love. It will see you through. Sometimes, you’ll just be tired. And that’s okay. It will all be worth it. Trust me.”

I’m still tired. I fall asleep at rock concerts, stop lights and in front of the TV; I nod off at movies, kids’ concerts and even weddings; I pass out while reading before bed, my book slipping out of my hands, reading glasses still on, mouth open. I half-wake to my husband as he tenderly takes my book and glasses, and placing a kiss on my cheek, turns off the light.

I’m still tired, but not all the time. I start most days feeling energetic and hopeful, though the demands of our busy family leave me running on empty by afternoon.  It’s just the way of it. This is my life; the one I chose and the one I love. Haley said it best: “In the morning you’re ‘Happy Mommy.’ In the evening you’re ‘Tired Mommy’ because we accidentally exhaust you.”

The little (and big) people I’ve birthed don’t mean to wear me out, they just need me. Which is an amazing feeling. I’m the Mom. And if it only takes a nap to turn me from Tired Mommy to Happy Mommy, fetch me my pillow.

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Filed under Aging, Babies, Childbirth, Down syndrome, Family, Motherhood, Parenting, Self-Care, Special Needs