Lisa Pullen Kent is a wife, mother, writer, fitness instructor, musician and passionate lover of people. She writes on parenting, marriage and the sacredness of the ordinary in family life. In her fifty-three years on the planet, she’s birthed four brilliant children, pursued three rewarding careers, lived two distinct lives and procured one true love; this is the stuff from which her writing is made. Originally from Arizona, Lisa adopted Missouri as her home and lives in Columbia with her husband and their two youngest children, one of whom has Down syndrome.
I went to church this morning—on my couch. A dutiful daughter, I spent the first half of my life in religious prostration, and then I left. But detachment from dogma meant disconnect from community and I wandered, people-less into my middle-age. In recent years, I sometimes sat, shyly, noncommittally, on the back row of a new church I discovered, an un-church. The Unitarian Universalists.
The UU church, nurturing spirit and service, brings a solace of words and music and familiar faces to my living room via Zoom on this second Sunday of social distancing. Congregants come like moths to the chalice flame. Greetings scroll up from the chat box as joiners bask in the warmth of shared hearts and minds, if not bodies.
The sun goes down The stars come out And all that counts Is here and now My universe Will never be the same I’m glad you came
Steve Mac, The Wanted
My sock drawer is stuffed to overflowing: Everyday athletic socks, fuzzy slipper socks, a few dressy pair of trouser socks. But my special collection consists of crazy, colorful knee socks and on March 21st I’ll have plenty to choose from in honor of World Down Syndrome Day.
Trisomy 21 is the technical term for Down syndrome. Chromosomes made up of DNA exist in every human cell, typically 46 chromosomes or 23 sets of two. In the case of DS, an abnormality occurs, resulting in an extra chromosome, 47 in all. The extra, third chromosome is on 21st set. 3-21. Hence, March 21st was officially declared the day the world would recognize these extraordinary individuals.
“I took a deep breath and listened to the old brag of my heart. I am, I am, I am.”
Sylvia Plath
There’s a stillness that descends on the hospital late at night, softening the harshness of bright lights and the sterility of hard floors. Sounds are muted and voices hushed. Sydney is the only patient in the sleep lab tonight located at the end of a long, empty corridor. It’s dark in her room but for a night light and the glowing dots of the medical devices hooked up to her. I shift uncomfortably in the reclining chair next to her bed and wonder how I’ll make it until morning when it occurs to me that my father-in-law spent more nights this way than I can count during the fourteen months of my mother-in-law’s battle with cancer. It also occurs to me that the last time I sat in the dark next to a hospital bed was with him, the night before she died.
When I was young, I married my best friend. It’s a cliché easy to dismiss as sentimental until it happens to you. In my husband, I found my home. Now, ensconced in midlife and traversing the terrain of family life, inherent with its joys and sorrows, I’m filled with deepening gratitude for his presence and a love that grows stronger — and simpler — with time.
A scene from the movie Valentine’s Day illustrates the enigma of mature love. After they’ve had a devastating rift, Shirley McClaine says passionately to her husband of fifty years, Hector Elizondo, “I know I let you down. And maybe you don’t think I deserve your forgiveness, but you’re going to give it to me anyway. Because when you love someone, you love all of them — that’s the job. The things that you find lovable and the things that you don’t find lovable.” His anger quickly melts. As he takes her in his arms, he whispers: “Shhhh. I understand. I’ll never leave you.”
The older I get, the more I’m drawn homeward. When the weather turns cold, my craving for soup on the stove, a fire in the hearth, and time to knit begs to be slaked. Chilly temps find me cruising arts and crafts stores, feasting on colors and textures of yarn, imagining new projects. Winter sends me digging for my stash.
On hands and knees with the bedspread flipped up, driven by this seasonal hunger, I drag out from under my bed baskets and totes of knitting supplies, including fifty years of my mother’s accumulation I inherited after she died. Unlike my messy stockpile, hers is meticulously organized: stitch holders, markers, and gauge rulers, and dozens of pairs of needles—aluminum, plastic, wooden, double point, circular—all collated by size and neatly labeled. Her handwriting mark the pages of dog-eared pattern books dated back to the 1950s. Unused skeins of expensive alpaca wool leave me to wonder at her unfulfilled intentions.
It’s a gorgeous spring day on our 22 acres outside Fulton, a brocade of rolling green set against a periwinkle sky. It’s where I come to breathe. Today all four kids, their families, plus my dad and sister visiting from out of state are here to celebrate. Four generations together, a rare treat. I’m relishing every idyllic minute. The afternoon, spent fishing, exploring, hiking, and picnicking, is nearly over before I remember the photo.
“Hey, you guys!” I say, calling everyone in. “Let’s get a picture under the big tree.”
The night is a pleasant 68 degrees, but heat emanates from the bright stadium lights, and I’m damp beneath my Rock Bridge High School T-shirt. My boots clink on the aluminum steps as I climb past the student section and up the bleachers. A few people in the stands wave and others call out “Good luck!” I slide into the seat my husband, Steven saved for me while I helped our daughter, Sydney, execute the night’s events.
“She’s ready,” I say, glancing at the scoreboard. A minute thirty left in the half. Steven pats my leg.
The words are sharp, a staccato litany of frustrations ricocheting around the room. They’re mine, directed at my misbehaving teenager. Adrenaline shoots through my veins. Careful, I think, sucking in a breath, holding it. The silence echoes loudly. In my head, the diatribe continues.
Shhhh, a gentle voice says. Stop now.
My youngest stands in her pjs, ten feet away in the darkened kitchen. Backlit by the hall light, she’s small for fourteen, but contrition renders her smaller. The fire has gone out in her eyes.
In the hush of the hotel room I hear cars rushing by on the busy interstate. Above the hum of the fan, a far-off siren rises and recedes. It’s late. My teenage daughters make their cozy bed on the pullout in the other room. Their noisy whispers taper to silence then morph into the breathy sounds of sleep. Cocooned in the quiet, I listen to the rise and fall.
My husband and I detach for the moment, suspended between their sleep and ours. We recline on crisp white sheets, he with his phone, and me, my laptop. Time seems to stop, or perhaps I’m just willing it to. Shutting off his phone, my husband rolls over and reaches for the lamp. “Goodnight, honey,” he says. “Don’t stay up too late.”
In the dark, a glow emanates from my computer screen. I remove my reading glasses and rub my temples. I can’t give in. Not yet. Facing down the night, I try to stretch the hours until morning when my 31-year-old daughter will undergo a double mastectomy.
It’s late December, only days to Christmas. The kids are out of school and it’s dark already at 4:30 pm. All the lights burn in the kitchen where my husband is busy making sugar cookies with our girls. Flour dusts the counters and floors. A delicious aroma fills the house. I’ve got work emails to tackle, but I’m doing it reclined on the couch while listening to Christmas music. iTunes shuffles our collection of eclectic albums, creating the playlist that plays pleasantly in the background. Until the opening phrase of Happy Xmas catches my ear.
“And so this is Christmas, and what have you done? Another year over and a new one just begun.”
The unmistakable timbre of John Lennon’s voice causes me to pause. I close my eyes to listen. Such a familiar, comforting melody.
Lisa Pullen Kent is a writer, yoga teacher, musician, and passionate lover of people. She writes on parenting, marriage and the sacredness of the ordinary in everyday life. Lisa splits her time between Columbia, Missouri, where she lives with her adult daughter who has Down syndrome and Steedman, Missouri, where she lives with her husband on their farm in the country.
