Sydney stands in front of the refrigerator and asks the question for the third time this morning.
“No, honey. Two weeks, remember? In two weeks.”
I gently nudge her out of the way to open the door and place the milk jug on the top shelf.
“Two weeks. Yes.” She repeats to herself. “So, not tomorrow?” she asks, stepping towards me.
“Nope. Not tomorrow,” I say, bending around her to put the oatmeal in the cupboard.
“Where’s Dad?” she asks, following me to the sink where I rinse breakfast bowls, our conversation a déjà vu of earlier when I ladled the hot cereal into these same bowls.
“Dad’s at PaPa’s, remember?”
“At PaPa’s?”
Sydney typically wants reiteration of our comings and goings—repeating the schedule outloud makes her feel secure—but lately, she’s been needing extra reassurance that her Dad and I will be around. Lately . . . since her grandmother died of leukemia.
“Yes, at PaPa’s house. They’re watching movies and having dinner,” I answer, placing the dishes in the dishwasher.
“Having dinner?” She echoes.
“Mm-hmmm,” I reply, looking below the sink for the dishwasher detergent.
Sydney clears her throat, then coughs into her elbow.
“Um, Mom? Is Dad coming home tonight?”
I take a deep breath. Patience, Lisa.
“No, remember? Dad’s staying the night to keep PaPa company so he’s not sad and alone.” I pour soap into the dispenser, shut the lid and press the start button.
“Because MeMe’s dead, right?” she adds.
There it is. I wipe my hands on a dish towel and come close, bending down to look at her.
“Right, honey. MeMe is dead.”
Her eyebrows shoot up and her eyes open wide. She pushes her glasses up on the bridge of her nose, sniffs, and tucks the hair behind her ears. But she doesn’t cry. She hasn’t cried.
Children grieve differently than adults, and differently from each other. Refamiliarizing myself with the work of Dr. Elizabeth Kübler-Ross, who in 1969 first proposed the five stages of grief—denial, anger, bargaining, depression and acceptance, reminds me that the phases can be in any sequence, intermittent or overlapping, or even skipped altogether. As a parent, I need to help my children with their grief work as well as tend to my own.
Both girls have been a bit stoic—they can’t possibly understand that their lives have changed irrevocably—though I expect when Thanksgiving and Christmas and their birthdays come around, MeMe’s absence will trigger a new level of realization. And especially with Sydney, I wonder how much she can conceptualize about the permanence of death. They both loved their grandmother and will undoubtedly miss her, but it’s been concerning to me they don’t seem more upset.
A package from a dear friend arrived like a long distance hug. Tear Soup: A Recipe for Healing After Loss, written by Pat Schweibert is a consoling story of Grandy who, after suffering a big loss sets out to make tear soup from scratch. Haley and I cuddled up on my bed and read how Grandy chose her largest pot to make her soup because she would need plenty of room for all the feelings and tears to stew in over time.
“. . . she slowly stirred all her precious and not so precious memories into the pot. Grandy winced when she took a sip of the broth. All she could taste was salt from her teardrops. It tasted bitter, but she knew this was where she had to start.”
As I read this sweet but profound metaphor, my own tears began to flow. Haley had voiced sadness, but hadn’t cried yet.
“I want to cry but I can’t. I feel like my emotions are locked up in a drawer and I can’t find the key,” she confessed precociously.
Page after page, the book poetically and artfully validated the human experience of bereavement. Paragraph by paragraph, the words described our unique, acute experience of losing MeMe, and as we read, Haley found her tears. “Tear Soup is helping us cry,” she said, laying her head on my chest, letting her tears fall on my shirt. Together, we made tear soup of our own.
As I’m putting the girls to bed that night, Haley says, “Mommy, I miss MeMe.”
Matter-of-factly, Sydney says, “We have the same name: Sydney Kay Kent, Linda Kay Kent.”
“Yes, Sydney,” I say. “You are named after her.”
Haley asks, “Why aren’t you sad, Sydney?” her chin quivering.
Sydney answered calmly, “Well, I feel a little bit sad. I heard Mom cry and I heard Dad cry and PaPa. But I heard MeMe say, ‘I love you.’ And . . . I danced for her.”
Which was true. After two hours of greeting friends at the visitation, Sydney had kicked off her shoes and pirouetted across the room to “Wind Beneath my Wings,” closing her eyes and moving expressively to the music in front of the podium which held vases of overflowing yellow daisies, a framed picture of Mom and a small wooden box holding her ashes, beautifully hand-crafted with a ceramic angel atop it and a plaque that read:
“Linda Kay Kent,
June 25, 1944 – September 7, 2013”
Haley’s eyes squeeze shut against her now-copious tears as she says to her sister, “Don’t you know you’ll never see MeMe again?”
I sigh thinking, no, she doesn’t know. Sydney doesn’t understand and might not ever.
But then Sydney says this: “Mom, every morning I wait for the bus. I feel her. MeMe’s in the wind.”
Elusive as it seems, she’s onto something. Maybe Syd is keeping her MeMe close in subtle ways that we can’t quite grasp, sensing her presence with a calm knowing; sensing her everywhere. Maybe she doesn’t feel the same sense of loss because for her, MeMe isn’t completely gone.
Wrapping my arms around both my daughters, I reach for the same reassurance; for myself and for them. Although I miss her, I take comfort in the thought that if I look, I can yet find her; in the wind through the trees, in the birds as they soar, and in the sun’s glorious rays that break through the clouds. If I listen I can hear her voice and her laugh and feel her live on in my heart.
Our tear soup will be brewing for a long time. The loss is painful, the memories are sharp and bittersweet, but the love shared is bigger than all of it. We’re going to be alright.
Grief lives in our house. Among the furniture, between the windows and the walls, it sits, thick and unmoving. Grief rides heavy on my chest. I can’t get a good, deep breath these days. It weighs down my husband’s shoulders and molds his features. Grief seeps into our nights of restless sleep and dreams of forgetting, of waking, and then remembering.
We lie on our bed listening to the falling rain. Wet, fat drops pelt the windowpane and punctuate the silence. He curls up behind me, concave where I am round; our bodies fit together, pieces of a puzzle. In the stillness, the edges between us dissolve. I fade into him, absorbing his substance. A crack of thunder sounds. I inhale sharply to pull the air into my lungs. He draws a deep breath in through an open mouth, his chest heaving. With a sigh, it rushes out. Together we breathe our mourning. There is comfort in our solidarity and we close our eyes to accept the brief respite.
It occurs to me that my father-in-law will never hold his wife this way again.
Before
If anyone could cure cancer with sheer will and devotion, it would be him. He will not leave her side. He sits, he stands, he paces. He drinks coffee and more coffee. He questions the doctors and the nurses and the therapists. He hopes against all odds. He isn’t ready.
He sleeps in a recliner pulled up next to the hospital bed. He covers her hand with his and they talk in the dead of night, recounting their fifty years of shared memories. He helps her try to hang on and when it becomes clear she cannot, she helps him try to let go.
Until a year ago, the only loved ones I’d lost were my grandparents who had lived full lives into their 80’s. I still miss them dearly and lament their passing, but tragic death, to those young and taken too soon, by illness or accident had not yet entered my experience. Within a span of a few months, loss hit hard, lodging painfully in my sternum. Three deaths. My friend from childhood, my brother’s son, my sister’s husband. And now, my husband’s mother.
I can’t bear it, but somehow I must stay present to witness. This is the gift I can give my family by marriage. I am wife, I am daughter-in-law, I am sister-in-law. But my own crisis is significant. I am losing a mother, too.
I was twenty-eight when I met her. Newly divorced and unable to travel to my own family far away, I faced my first Christmas without my young children. My closest girlfriend insisted on taking me home to the bosom of her Midwestern family. Depression had me in its clutches. Morose and self-absorbed, I tried to decline. I wanted to retreat from the world at large and immerse myself in desolation, but she wouldn’t have it and dragged me across the country to Missouri.
I had never been anywhere east of Colorado, and all I knew were the clichés I’d heard. Friendly, kind and generous, the stereotypes of folks from the heartland held true, but more than that, these people radiated joy that spread to all within reach. Misery didn’t stand a chance when infected with their sunny optimism. In a noisy house full of activity, my senses were barraged: the smell of delicious food, the comfort of homey Christmas decor and quaint antiques, the resonance of children’s voices playing and adults laughing and talking all at the same time. My future mother-in-law welcomed me to her home, without conditions, without judgment. She simply loved me for being myself, a self she barely knew, but loved because her daughter loved me. I’d landed in a Norman Rockwell painting and it felt like being wrapped in a warm blanket after coming in from the cold.
I was teased for my wild hair and tie-dyed shirt and Arizona ‘accent.’ I gave as good as I got, though, imitating my future father-in-law’s Missouri dialect. “Well, now, you gotta take and go on past the ray-road tracks, that-a-way you’ll run right into that rest-runt. I tell you what, have they got great Eye-talian food. Jim-in-ey!”
We gathered around the large table as plates of turkey and ham and stuffing and potatoes were passed. I listened to stories from the past, each memory more outrageous, each teller louder than the last, boistesrous laughter erupting between the words that flew back and forth. We played board games until midnight and imbibed in PaPa’s famous punch, a delicious concoction of fruit juice, soda and what I’m fairly certain was an entire bottle of Southern Comfort. And on Christmas morning, when presents were doled out, I was handed more than one with my name on the tag. Gifts bought for me. And not just any gifts. How this woman knew exactly what I would love I will never know. The startling gesture touched me deeply. Can you fall in love with someone instantly? How about a whole family? They had me at “Welcome to Missouruh.”
My connection to her continued through the darkest time of my life. I felt doubly blessed to have my own mother to soothe my heartache and another mother figure who healed me unknowingly, simply by being herself. More visits and conversations allowed me to observe her ways, her smiling consistency and unflinching positive outlook, her effervescent energy. I came to know her well, and as they say, to know her, is to love her.
Three years later, as much a surprise to me as to everyone else, I discovered the love of my life right there in this family. Her only son, the brother of my best friend, proposed to me and I became a legal in-law, but I was already hers. I grew in devotion to her like Ruth to Naomi. “Whither thou goest, I will go.” She loved my children, and not just the Kent babies that came later, but those she inherited, my big kids, scooping them up and adding them to her brood like they’d been there all along, too. We were family.
Over more than twenty years and across hundreds of miles, we shared happy, contented times, and the inevitable tough times brought us closer still. But, this? This is beyond tough. The worst has happened: Mom is the heart of this family and losing her is unthinkable.
When the call comes it is unexpected and triggers a panic we try, and fail, to suppress.
Steven’s sister, my best friend, Traci says, “You need to come. Now.”
With palpable urgency we throw things in suitcases, cancel appointments, and take the girls out of school, making the interminable drive to St. Louis at 80 mph. Reeling from shock, we don’t speak, but in our racing thoughts, we reach for anything to steady the lurching shift that’s thrown the world out of sync. Mom was okay just last week when they sent her home to recover from an arduous stem cell transplant. Even if she had a ways to go, she was definitely on the mend. But, now we know. The transplant didn’t work. Her body did not respond the way we’d hoped. For fourteen months the cancer attacked her viciously, resisting treatment after treatment, sometimes with near-fatal reactions. How unfair, how goddamned cruel, that now, after all she’s endured—transfusions, surgeries, hospitalizations, procedures that should have granted, if not a cure, at least more time, how devastating that she is left with this abrupt, horrifying end. She is only 69. As she said, “I was supposed to have more time.”
The reality hits when we reach the hospital. She is going where none of us can follow. Nearly everyone has come and Mom is surrounded by the ones who love her most, all three of her kids, middle-aged now with kids and grandkids of their own, her brother and sister, six of her eight grandchildren, and friends who have traversed the decades. Disbelief rocks us as we grope for meaning in this brutal certainty.
Compelled by prescience, though exhausted, she will not rest until everyone has been seen, the wrenching goodbyes a sacred ritual.
Special permission is granted to our young daughters to visit and when they enter shyly, she touches and kisses them. With heroic effort, between wheezing breaths, she helps them understand what’s happening.
“Remember when MeMe said everyone has a time? It wasn’t time before but, well, it looks like it’s MeMe’s time now.” Her frail voice breaks and she pauses. “But it will be okay. Somehow it will be okay.”
They bend over her, careful to avoid the central line and oxygen cannula, for the last hug they will have. And after they’ve left, she weeps for the first and only time, utterly bereft, inconsolable.
Later, her girlfriend of more than forty years braces for their final farewell, putting a smile on her face before walking through the door.
“Hey, gal. Whatcha doin’?” she says in a casual tone.
“Well,” Mom says, weakly, barely audible. “Looks like I’m kicking it over.”
Bantering constantly, regardless of the situation, that is what they do. It’s how they say, “I don’t know what I would have done without you this year,” and “I don’t know what I’m going to do without you for the rest of my life.” They part not with ‘goodbye,’ but ‘see ya later.’ It’s not until Mom’s beloved friend is down the hall and around the corner that she finally lets go, collapsing into her husband’s waiting arms.
I’ve waited my turn, respectful of the pecking order. But I need to see her. I need her to know how I feel, but there are no words to convey everything she means to me. For Good from Wicked plays in my mind along with the memory of sitting next to her at a live production of the Broadway musical—my birthday present to her—as lyrical voices resonated in the acoustical glory of the Fox Theatre. If I dared, I would sing to her,
I’ve heard it said That people come into our lives for a reason Bringing something we must learn, and we are led To those who help us most to grow If we let them And we help them in return It well may be, that we will never meet again In this lifetime So let me say before we part, so much of me is made from what I learned from you You’ll be with me like a handprint on my heart Because I knew you . . . I’ve been changed for good
Instead, I sit quietly by her bed, willing my love into her awareness as she lies sleeping. Suddenly, she opens her eyes and sees me. All that’s between us shimmers in the air. “I love you, Lisa Kent,” she says intensely. The blessing washes over me. “I love you, Linda Kent.” Tears are in my voice. She knows. She knows.
Her goodbyes complete, the dying process begins in earnest. As pneumonia rages, her heart races and her breathing becomes torturous as her body fights for each inhalation. A sip of water to a parched mouth, soothing balm to cracked lips, a cloth to a fevered head, these only ease her suffering briefly.
“Rest now, Mom,” her oldest daughter, Lori says. “Just go to sleep. We’ll be right here.”
But in between fretful sleeping and waking, she struggles to tell us one more thing. Barely able to form the words, she manages to utter, “I want us to stay a family.”
She’s worried that without her we will drift apart, let conflict come between us. She is adamant, and rightly so that we respect her wishes.
“I want you to love each other and be happy.”
“We will, Mom,” we say in unison.
“Promise?” she pleads. She must know we will take care of each other before she can let go.
“Promise.”
The nurses move around us now as we keep vigil. Confined to a hospital room, a waiting room and a hotel room, perspective shifts radically and the minutes and hours lose meaning. Has it been three days or a week? A surreal bending of space and time becomes our existence; there is no longer a world outside this place.
My husband won’t leave. By her bedside, he quietly holds her hand as she sleeps fitfully, though it’s excruciating for him to watch his mother suffer. She stirs and asks in a panic. “Where is Steven?” though her hand is still encircled in his, their long fingers cut from the same pattern.
“I’m right here, Mom.” He strokes her cheek with the back of his hand. Reassured, she relaxes back into the pillows.
As the hours drag on, each time she wakes, finding herself trapped in a body wrecked by disease, her anxiety mounts. “Unplug me,” she says, though she is not on life support. With courageous acceptance, Mom is ready to go, leaps and bounds ahead of us.
Soon, the sedatives and pain meds help calm her as the separation begins. She drifts somewhere between here and . . . not here. She’s stopped talking, retreating.
Dad sits on the edge of the bed and leans in close. “You are the love of my life,” he whispers. “You’ve fought so hard.” He brings her hand to his lips, bowing his head. Sobs wrack his body. “Wait for me, I’ll be there soon.”
I cannot bear it and turn away from the intensely private moment. My hand covers my mouth and my eyes search for my husband’s. We look to his two sisters and an unspoken message travels between; we surrender to the swelling tide of anguish.
The next morning, Traci pushes the bulky hospital bed and the attached monitors and machines away from the wall and angles it toward the window. The rising sun streams in. Peaceful music plays quietly. Tranquility eases the tension for a blessed moment.
With her last bit of strength, she lifts her heavy eyelids a fraction. With incredible will, she lifts a shaky hand off the bed a mere few inches before dropping it. Through the small slits, her eyes are cloudy and seem unfocused. Yet as we watch, we swear her gaze moves slowly from face to face, tracking, lingering on each one of us. An electrical connection pings back and forth. She is here. But she is going. Soon.
It happens in a whisper. Dad and Lori have left, telling her they’re just going to grab some lunch. Kissing her forehead, he says, “I’ll be right back. See you in a minute.”
Steven, Traci and I, continue our watch in silence, together, but apart. Sitting in a chair, I rest my head in my hand and start to sleep, to dream. For days now, her fight to breathe has become increasingly urgent. The loud, rhythmic sound churns, a biological instinct for self-preservation. It’s become the background noise, a soundtrack to dying. As I drift further, something pulls my awareness back, as if I’ve been tapped on the shoulder. The lack of the repetitive churning sound slowly enters my consciousness. Then, abruptly, I wake up. Watching, I see her take a quieter breath. Then nothing. Awareness descends synchronously on us all and we spring to the bedside.
We wait and there’s another breath, easier this time. A pause. A softer breath, almost a sigh. A longer pause. Then another breath . . . that becomes . . . her last.
Traci sobs and cradles her mother in her arms. Steven lays his cheek next to hers. I run for the nurse and hear my husband cry, “You were the best mother I could ever ask for. I love you so much.” Down the hall I hear Traci wail like a child.“You held me when I came into the world and I will hold you as you leave.”
The nurse confirms it is happening and removes the oxygen mask. His hand on her chest, my husband feels her heart stop. We all feel it when she lightly, elegantly lifts from her body and glides away.
After
An ephemeral gap in the storm appears suddenly, allowing brilliant light to bleed through the wooden blinds and warm my face for a moment before dark clouds converge, a pall returning. I roll over to face my husband. Eyes closed, he is motionless, yet within, I can feel his disquiet. I sense the vibrations of pain coursing through his body. His mother has died. And where did she go? I can’t find her and it frightens me. She is gone, slipping the surly bonds of earth despite our desperate longing for her to stay. I know she no longer suffers. I believe she’s with the angels now, yet the cavernous void in her absence can’t be quantified.
I cup his cheek and smooth his brow. He opens his eyes to look at me and I see . . . her eyes. He has his mother’s eyes. I see her in his cheekbones. And in his smile. He has her generous nature and tender heart, too. And brilliant mind. And love of cooking. I’m acutely aware how he came from her.
My spirit soars with this epiphany. My babies, they came from their father, who came from her. Like Russian stacking dolls, they too, are part of her, shaped by her influence, molded in her image. She lives on within them; everything she was and everywhere she was from.
From small towns and familiar neighbors and grandma next door. From gas at 21 cents a gallon and no indoor bathroom and a washing machine hooked up on the back porch. She was from the chill on a fall morning in Kansas as leaves blew along cracked sidewalks, and from laundry hung on the line to dry in the spring sunshine. From playing board games inside on snowy days and riding bikes outside until dark.
She was from an absent father and an unstable mother. From a younger brother and sister to look after and from growing up too quickly. From babysitting at ten and working at Tasty Freeze at thirteen for $.75 an hour. From a dance club out of town in an old warehouse and cherry vodka and Jan and Dean and Ricky Nelson.
From an office job at Pittsburg State and a handsome fraternity boy from the university. From young love they said would never last. From a little white house and domesticated bliss and round babies that bounced on her knee. She was from washing dishes and washing out diapers. From friends who became family and raised each other’s kids, who made their own fun on a Saturday night when money was tight.
From the Kool-aid house where everyone wanted to hang out with the mom they wished was theirs. She was from “I’m gonna come down there and spank some butts!” and “Get outta that, dinner’s almost ready,” and “Be home by midnight and don’t drink and drive.” She was from “You can be whatever you want to be,” and “I’m so proud of you.” She was from motherhood first and everything else second.
She was from crockpots and homemade macaroni and cheese and chocolate cake and Christmas braid. From birthdays and Easters and Valentine’s Days cards with cash inside. From shopping year-round and finding the perfect gift for the perfect person. She was from boundless generosity.
She was from cross-stitched samplers and Precious Moments figurines and Longaberger baskets. From Christmas trees in the living room and in the family room and in the kitchen and in the bedroom, decorated with ornaments that aged with her children, each marked with the date and holding the memory of that time. She was from Santas: on the hutch, the shelf, the table and the stairs. Old World Santas, Black Santas, country Santas and ceramic Santas. She was from Santa himself (played by PaPa) coming in through the back door on Christmas Eve with presents for the little ones. She was from trash bags of torn and crumpled wrapping paper and delicious aromas and bellies too stuffed to move.
She was from a house bursting with laughter and life and noise, from her dream of a large family come true. From shouts of “MeMe!” followed by torpedo hugs around the waist. From special weekends and movies in the living room and Barbies and arts and crafts and baking cookies. She was from beautiful hands and gentle touches and soft hugs. From open arms for everyone who crossed her threshold. She was from acceptance and judging no one.
She was from hard work and dedication. From eye-glasses and fittings and appointments and patients and co-workers who loved her, from knowing everyone in town. She was from rising before the sun and falling asleep in front of the TV.
She was from retirement and Grandparent’s Day at elementary school and dance recitals and choir concerts and softball games. She was from best friends and vacations in the Smoky Mountains and Tybee Island and Santa Fe. From two couples, best friends, traveling the country and shopping at the Lake. From coffee on Saturday mornings and growing old together.
She was from signature perfume and Pandora charms and Land’s End sweaters and scarves from L.L. Bean. From new recipes and new bedspreads and new rugs. From gardens and bird-feeders. She was from Mid-West Living and O Magazine. From bookshelves and bookshelves of books. From Kindles and laptops. She was from photos on Facebook and photos hung on every wall.
She was from spending her entire adult life as wife to her husband, for better or for worse, in sickness and in health. From forgiveness and steady calm in stormy seas. She was from dignity and grace and long-suffering.
She was from pink ball caps skewed to the side to cover her balding head and Relay for Life and incredible courage in the fight for her life. From comforting others even at the end of her own journey. She was from “Everything’s going to be all right,” and “I love you so much,” and “I’m ready to go.” She was from pure love.*
Memories and impressions of my mother-in-law flood my senses. The sting of death remains, but losing her is impossible: she’s here. My breath rushes in and I’m filled with the Essence of Her Presence. I exhale . . . then begin to weep. My husband’s arms lock around me quick and tight. Even in his own grief, he understands the depth of mine. He will hold me as long as it takes.
Grief lives in our house, but so does joy. The world without her will never be the same, but the sun will come up and the days will go by. The children will keep growing and a new life will join the family when our grandson is born in a few months as we more to come as we remain a family. We will laugh and celebrate and dream. And when remembrance overwhelms us, we will cry and rail and grieve again. There is no escape. We are powerless to circumvent mourning. I can’t bear it, but somehow I will, by leaning into the grief and feeling it in my bones, by going about living our robust lives and by knowing that the two are not mutually exclusive.
Mom wants us to be happy. She told us that in her dying wishes. She loved the song, You’ll Be in My Heart, by Phil Collins from the movie, Tarzan, which serendipitously came out the year our daughter, Sydney, was born with Down syndrome. The lyrics speak of the protective and nurturing nature of a maternal figure. I think she wants us to know she’s still here, loving us, mothering us. And I believe if we listen, if we just look over our shoulders, we will always find her.
You’ll be in my heart Always, I’ll be with you Just look over your shoulder Just look over your shoulder Just look over your shoulder I’ll be there always”
I love you, Mom.
*Format taken from the poem Where I’m From by George Ella Lyons.
With a white Styrofoam cup in hand, he bends over and carefully spoons ice chips into her mouth, her lips parched and quivering. A few pieces drop off the plastic utensil onto her collarbone, the skin exposed where the hospital gown has slipped off a bony shoulder.
“You’re not very good at this,” she says weakly. Her breathing is labored and shallow. The effort of reaching for the ice and talking at the same time is too much and she lays her head back on the pillow, exhausted.
“Well, whatcha gonna do?” He replies good-naturedly. “I am all you’ve got.”
Quiet for a few moments, eyes closed and very still, she appears to have fallen asleep. But then, my mother-in-law’s eyes open and she answers irritably, “I’m getting somebody else. You’re fired.”
But, it’s the cancer talking. And the chemo and the side effects and infections that have devastated her body and threatened to defeat her spirit.
As my husband’s father gently wipes away the melted ice, he smiles and croons, “Oh, I’m fired, am I? Okay, babe. But I get to interview my replacement.”
For 50 years they’ve faced life side by side. For better or for worse. In sickness and in health. Strong when the other is weak, optimistic when the other is sad, calm when the other is upset. She is devoted to him and he adores her. Two souls intertwined; theirs is the ultimate love story.
Young lovers can’t begin to imagine what awaits them; that the family born out of their passion will test their resolve and challenge their allegiance, forcing them to redefine love as they know it.
Years ago, when we were young, I married my best friend. It’s a cliché sung about in love songs and easily dismissed, at least until it applies to you. However prosaic it may sound, my husband is my partner, in all things. He is my co-parent in raising our children, he is my intellectual equal, my companion and comforter and confidante. The love of my life. He is my home.
Nonetheless, navigating the constant demands of family life takes a heroic commitment and requires a willingness to place another’s needs above one’s own at times, trusting that it will balance out. Never static, the relationship is fluid, the dynamics ever-changing, and it’s precisely this ebb and flow through seasons of abundance and seasons of bleakness that secures the longevity of a marriage.
Steven and I have been doing this parenting gig for a long time and the truth is we’re tired and we sometimes take it out on each other. It’s a known fact that parenting children with special needs can contribute to higher divorce rates, though interestingly one study found that in families who had children with Down syndrome the divorce rate was actually lower than in families with other birth defects or no identified disability. Predictors of divorce among parents of kids with ADHD, however, showed the divorce rate was nearly twice that of the general population before the child’s age of eight.
So, statistically speaking, Haley’s special needs add more marital stress than Sydney’s. I would concur. Haley brings an energy to our family that is amazing and astounding, but also overwhelming.
Frequently my mind will spiral into panic when tallying what needs to be done, when, how and by whom until I’m convinced that I am doing everything. Resentment poisons my thoughts and I can’t see clearly.
“Are you okay?” Steven asks. “You seem crabby.”
“I’m fine,” I mutter, crabby that he called me crabby.
And when my husband’s frustration mounts, his accumulating stress has nowhere to go but outward. His patience is depleted; he is not pleasant to be around. “Leave Daddy alone,” I tell the girls, giving him a wide berth.
Inevitably in marriage, storms hit. Some hard. Rain falls heavy and saturating until we can no longer buoy the other up. A drowning person cannot save another drowning person. Misunderstandings, unspoken expectations and harsh words flood and we are in danger of being swept apart by the current.
But gratitude is the ballast that holds fast, and forgiveness the rope that leads us safely back to each other, hand over hand.
At the end of long days I reach for my tall husband as he walks into the kitchen and wrap my arms around his waist. It takes only ten seconds to feel the bands around my chest begin to loosen. He rubs my back. I close my eyes and breathe.
Then, I feel Haley dive between us, using her body as a wedge to leverage us apart, making a parent sandwich of herself.
“Group hug!” she yells, her voice ringing through the kitchen.
And . . . the moment is over.
Yet within this chaos of everyday life, our love solidifies into an unbreakable, brilliant diamond; under pressure, the mundane is transformed into the extraordinary.
I watch him from across the room when we’re enjoying the company of friends: the expressions I know so intimately; the way his lips curve up at the corners, showing his gums when he smiles; his eyebrows, animated when he talks, and the dimples that mesmerized me when we first met, still flash when he laughs. Not as young now, but our life is written on his beautiful face.
He stands with one foot on the low rung of a stool, his legs long in slim jeans, sporting a graphic t-shirt and trendy glasses, holding a craft beer in one hand and gesturing with the other as he converses.
I fall in love all over again, but harder. I see not only an attractive man, but a man who fixes my computer, and makes me laugh, and runs through the mud in a Viking helmet with me. I see a father who camps in the backyard with his girls, and teaches them about fish and birds and nature, who strokes their cheeks tenderly with the back of his hand when he puts them to bed; a father who endures long hours, sacrificing his own leisure so he can pay insurance premiums, mortgages and college tuition, who generously provides the good things in life for his family, who gives and gives and gives and gives.
I hear not only his voice, but the clang of a lug wrench on concrete as he replaces the brakes on my car, the rhythm of the washing machine as he does 52 loads of laundry, carefully separating my Lululemon to hang-dry. I hear the soft click of the bedroom door as he tiptoes away on a Sunday morning, letting me sleep.
He feels me staring and turns. “I’ve got you,” I say without speaking when our eyes meet. “I’ve got you,” he answers.
Ours is an ultimate love story. Tested and true, redefining love as we knew it.
Like my parents-in-law.
Love is sleeping on a roll-away bed in a hospital room, an arm’s length from his wife. Love is fighting the battle of a lifetime, with unending courage so she can stay longer with her husband.
“I was supposed to have more time,” she sighs.
“You’re not dying today,” he answers. “Not today.”
When I was 13 I sketched my mother’s profile in church. Regal, she sat with her chin tilted upward, receiving enlightenment from the pulpit, her features arranged serenely. Thick, auburn hair hung past her shoulders. The long feathered bangs of 1976 framed her face. To me she was breathtaking. She was the sum of her parts and more; soft hands that soothed, full lips that pressed to a fevered forehead, arms that embraced, a gentle voice that lulled away hurt.
Today the pencil drawing, its edges burnt and the pulp decoupaged onto wood, hangs in her apartment, my adoration for her captured; a living thing. From floor to ceiling, photographs of her children line the walls. She wraps us around her like armor to do battle with her longtime companion, multiple sclerosis. From 2,000 miles away I resonate her pain. I mourn her loss, little by little. Attacking itself, her body betrays; her mind, too, keeping its secrets and misplacing her memories.
My husband and I had dinner last week with another couple, friends of ours expecting their first child(ren), twins, and expecting them soon. As we joked about the wife’s swelling feet and widening girth, (and the good fortune that her husband is strong enough to hoist her off the couch), I notice beneath her overt anticipation of the blessed event(s), the covert exhaustion she was hiding. An unmasked expression crossed her pretty face, just for a moment. One that only a gestating woman in her last weeks would understand, one that said, “Please, God, let this be over. Right now.”
In sisterly solidarity I immediately flashed back to pregnancy, a state both magical and miserable, completely consuming; a transformative rite of passage. In the nanosecond it took to relive, the realization that I’d never actually be pregnant again descended on me with finality. I will never again grow a child inside my body and I’m not sure how I feel.
Coworkers, friends and family all seem to be doing it: multiplying and replenishing the earth. Pregnant women surround me, their ripening bodies nurturing the genesis of life where there was only potential. No matter that women have been giving birth since the dawn of time, each new miracle astounds me.
I won’t experience an unseen little stranger rolling underneath my rounded belly, pushing me from the inside (and in the case of my youngest, punching me), proclaiming their presence with every hiccup and jab to my ribs, staking claim to my heart long before their grand entrance. I won’t bring a brand new person into the world, someone who didn’t exist before, but without whom I’d be incomplete. That part of my life is over. Chapter closed.
It’s not about wanting another baby — twinges of longing for a tiny human, swaddled and sweet smelling have been replaced by relief over no more diapers or colic or projectile vomit. Plus, after a bit of waffling, the decision to be done was made after my third baby, though the fourth did not get the memo.
No, this is about discovering myself past childbearing age, about acknowledging my progression from maiden to mother to crone. What is this ambivalence, and why does it feel like loss? Possibly because fertility and youth are intertwined; I’m no longer fertile therefore no longer young? But perhaps it’s more about seeing the journey from birth to death as a one-way trip, and feeling time, like a strong gust of wind, pushing me forward.
The first time a child split me wide open, body and soul, I found purpose. Fragile, yet resilient, so new, yet so familiar, I held, in my arms, the answer to every question; the meaning of life itself. And each time I cupped a small rounded head and inhaled the intoxicating fragrance of newborn skin I was reborn. Changed. I simply do not know who I would have been had I not been a mother. The archetype has imprinted my identity so as to affect all other relationships; all paths taken and not taken.
Bearing evidence of birthing and breastfeeding four babies, my body has lost the elasticity to reshape itself. My psyche still grapples with maintaining a separate sense of self while giving my children my whole self, an inescapable urge. But, though I may disparage my life or wish briefly for something different, I know I wouldn’t trade the sacrifices made for the indulgences gained.
At 31, a divorced mom of two school-aged children, I remarried with hopes of a second chance at the happy family I’d always wanted. I dreamt of more babies to cradle. After a miscarriage, at 36, I gave birth to a beautiful baby girl with thick red hair, milky white skin, and Trisomy 21, Down syndrome. The initial shock of her diagnosis was surprisingly short-lived. Bringing gifts, her presence was cause for celebration. She taught me to slow down, breathe, and stop long enough to find stillness. She taught me the richness of a simple life. She taught me contentment. And her younger sister, despite the 99.9 percent effectiveness of birth control, was born when I turned 40. She teaches me… patience.
Mothering is nothing if not an exploit of extremes, and for every Hallmark moment there are 200 ‘Suck it up, you’re the Mom!’ moments. Like being eight months pregnant and worried sick over an absent teenager, hours past curfew, before cell phones. Like weeks of hospitalization with a two-year-old in critical condition. Like night terrors at 3 am with a delirious 7-year-old. Or apoplectic meltdowns in the supermarket and shoes thrown from the back of a minivan. Or Sesame Street and Teletubbies on video loop. Or pet salamanders and pet mice and pet birds, who still poop, even though they’re small. Like all things educational; relentless forms and meetings and bureaucracy, from kinder to college. Like sleep deprivation that lasts for years, and new appliances that last five minutes, and endless sticky messes.
Babies are akin to kittens; adorable at first, but quickly turning into cats. Adoration got me through midnight feedings, hysterical crying, and explosions out both ends. Devotion gets me through the rest: dirty dishes, dirty faces, dirty clothes and dirty rooms. Through broken bones and bruised hearts. Through whatever it takes to get my chicks from here to there, to their moment in the sun, when I, their biggest fan, cheer loudly, “You did it! I knew you could. I knew you would!”
I’m not a perfect mom. Far from it. I lose it on a regular basis (my sanity, my temper, my grip). My kids drive me right over the edge, but I love them with a ferocity bordering on psychotic. I don’t think I’m unique. Mother-love, the most powerful force in the universe, can save the world and I wouldn’t swap it for a stunning body or a hundred trips to Europe or a life of leisure, even on the days I swear I’m this close to selling my offspring to the highest bidder. On the days I need a reminder, I replay in my mind a particular night I put my youngest, the one who defied the odds, to bed. Not yet 2, she’d overheard me referring to her unexpected arrival on the planet as I often did by way of an affectionate nickname. Most likely, I’d had a rough day, since every day’s a challenge when you have toddlers. Presumably I wanted to get her down and escape to a glass of wine. As she nestled close for a kiss she said, “Mama? I you bonus baby, wight?”
Oh, yes. A bonus. Something extra. Much more than I bargained for, the challenges of motherhood were impossible to foresee, but equally unknowable were the profound rewards. And its infinite nature; a mother doesn’t stop mothering when her children are grown. In my mother-in-law’s soothing voice over the phone as she reassures her son, a middle-aged man, is the love of a mom for her little boy. Across the miles, in an email, my mother’s words carry a tender caress to me, her daughter, the mother of grown children herself.
There will be no more babies, at least not from my womb. Someday in the not-too-distant future, the babies of my babies will christen me Grammy or Nana or Gran. The thought is surreal, yet, enchanting. When the child of my child is placed in my arms, I will lean in close and press my cheek to that precious face, so new, yet so familiar. I will inhale the intoxicating fragrance of newborn skin and look into soulful eyes seeing generations past and future. And in the sacred hush I might hear heaven whisper, “This is the meaning of life.”
Flying over New Mexico on my way to Phoenix, I peer through the airplane’s small window, taking in the vastness of the red rocks below. I’m going home to the desert. To the funeral of my brother’s son.
People in my life keep leaving. They move away or they change. Sometimes they just stop answering my calls. Or they die. Abruptly, they’re gone from my life. I don’t know why this keeps taking me by surprise or why the blow to my heart doesn’t diminish with its recurrence. I’ve been collecting losses and abandonment along my path like souvenirs on a trip.
I can’t seem to find my way through the loss. Pain, heavy and suffocating, has set up residence in my chest. Not long ago, one of my sisters lost her husband to cancer. Around the same time, a close friend died from suicide. My heart–the organ that pumps my blood and the seat of my emotions–hurts from so much grief. And now, my nephew, this precious boy, not yet 21, is gone. Nickolas was only eight years old the last time I saw him. Maybe it was I who abandoned him.
The way I walk I see my mother walking, the feet secure and firm upon the ground.
The way I talk I hear my daughter talking, and hear my mother’s echo in the sound.
The way she thought I find myself now thinking, the generations linking in a firm continuum of mind.
The bridge of immortality I’m walking, the voice before me echoing behind.
by Dorothy Hilliard Moffatt
The hostas are coming up; tiny shoots penetrating the soil and unfurling, the coils of their leaves break the earth in a luscious green array. The newness of each eruption symbolizes advent, a beginning. Winter’s end yields to a yawning genesis of pure potentiality; at its origin, the verdant metamorphosis of a living thing is simply breath-taking. And sensual. It is the caress of a gossamer breeze across the face; the warmth of sunshine on skin; the lyric birdsong of nest-makers in flight. It is, too, the delicate scent of a newborn’s hair inhaled, the soft curve of a cheek traced, the exquisite beauty of a child’s form realized. Senses awaken. Life, lying dormant, regenerates. From nothing, something. This is how it starts—the dawning of spring. The cycle of a human life.
My Grammy died a few months before Sydney, with a full head of copper hair, was born. My fiery Irish matriarch of a grandmother called me ‘love,’ drank Olympia beer from the little cans and quoted A.A. Milne. She was the first person I loved to die (“Don’t say ‘pass away’ when I’m gone, FOR GOD’S SAKE. I’ll be DEAD! Say, ‘She died.’”). I was bereft she wasn’t there to hold her great-granddaughter, but the significance of one life ending and another beginning wasn’t lost on me. Ancestral generations come full circle and begin again. I must fade so my children can blossom.
Lisa Pullen Kent is a writer, yoga teacher, musician, and passionate lover of people. She writes on parenting, marriage and the sacredness of the ordinary in everyday life. Lisa splits her time between Columbia, Missouri, where she lives with her adult daughter who has Down syndrome and Steedman, Missouri, where she lives with her husband on their farm in the country.
“Are you going to Colorado tomorrow, Mom?”
nd I had dinner last week with another couple, friends of ours expecting their first child(ren), twins, and expecting them soon. As we joked about the wife’s swelling feet and widening girth, (and the good fortune that her husband is strong enough to hoist her off the couch), I notice beneath her overt anticipation of the blessed event(s), the covert exhaustion she was hiding. An unmasked expression crossed her pretty face, just for a moment. One that only a gestating woman in her last weeks would understand, one that said, “Please, God, let this be over. Right now.”
