Category Archives: Family

In the Love Place

And so lying underneath those stormy skies
She’d say, oh, I know the sun must set to rise.

Paradise by Coldplay

~For Richard, Heidi and Gabriel~

It was Sunday afternoon. The weekend that seemed to stretch out enticingly before me on Friday was, for all intents and purposes, over. I sat on the couch, mindlessly surfing Facebook, playing Angry Birds. I had the ‘Sunday blues,’ that restless dissatisfaction that strikes around 5:00 p.m. when the realization that a weekend filled with relaxation and leisure is just not going to materialize. This happens frequently. My days get filled with grocery shopping, running kids to activities, projects at home, work issues, and other mundane tasks. My fun time gets relegated to Saturday night after the kids go to bed and I pass out halfway through a movie.

I felt a shift coming in the weather foretold by the pounding headache that stormed my skull. Sitting alone I looked out the window at the gathering clouds and malaise settled over me as I thought with a sigh how the girls would be home shortly. I’d have to get up from this couch to start the nighttime routine: wrangle up dinner, corral kids into the shower and herd them to bed. I’d go through Friday folders (Sunday night folders, let’s be real) and look ahead to everyone’s schedules, gearing up for another busy week.

But that was all before I got the news that my brother-in-law had died. Just 45 minutes earlier, while I was lamenting the end of the weekend, he’d taken his last breath and given up the battle he’d waged to the finish. Though he and my sister were separated, in the end, their differences didn’t matter. The strife and tension between them healed spontaneously on his journey from this plane to the next. When cancer took over his body, she took him into her home. She tended to his dying and in the process found forgiveness. Her focus was on creating lasting memories for her son, their son.  He is seven, my nephew, much too young to lose his father. And his father, much too young to lose his life.

Richard suffered in pain and struggled for every breath. He had not come peacefully to his death. The denial tortured both he and Heidi. When his agitation became too great, the meds gave relief and he drifted in a morphine-induced fog. My sister lay down with her husband, pressing her body to his, her mouth to his ear. 

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Filed under Family, Letting Go, Loss, Marriage, Siblings, Sisterhood, Special Needs

Light Through the Aperture

old camera

 

God bless the postman who brings the mail.

And bless the cowboys out on the trail.

Bless Mommy and bless Daddy who come each time I call.

God bless the folks I love, God bless us all.

Lyrics by Tom Murray, Music by Tony Burrello, 1953

I took a quiz once to define my priorities in life, listing the three possessions I would save if my house was on fire. The answer was the same then as it is now; family photos are numero uno on my list. And two and three as well, since I would lug through the flames as many albums as I could drag or throw. Now, in the digital age, our collective family history is conveniently stored on my hard drive and I imagine in my panic, I might heave my iMac out the window. It may seem like dramatic heroics to rescue mere two-dimensional images, but these visual reflections of the past not only warehouse and catalogue individual moments, but also activate and develop the negatives in my memory, bringing the people, places, and times surrounding those moments back to life, in vivid 3D Technicolor. Pictures tell stories. Pictures reveal secrets. Pictures frame truths. Irreplaceable homages to what has been and never will be again, they are priceless.

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Filed under Family, Memories, Motherhood, Parenting, Siblings, Travel

Joyride

red convertibleThe secret of life is enjoying the passage of time.

Any fool can do it; there ain’t nothing to it.

Nobody knows how we got to the top of the hill.

But since we’re on our way down,

We might as well enjoy the ride.

Sliding down, gliding down, try not to try too hard.

It’s just a lovely ride.

James Taylor—The Secret ‘O Life

I don’t always recognize I’m headed for collapse until, speeding down the freeway at 100 mph, dashboard warnings flashing, I veer off the road to make an emergency stop. I’ve gotten so good at disregarding my maintenance lights, by the time I realize I’m in trouble, I’m already sputtering and careening; out of gas, overheated, or worse, out of control, crashing and taking out everyone around me.

When we moved from Missouri back to Austin, Texas in 2003, circumstances combined to create a fusion of indescribable stress that will go down in Kent family history as The-Time-Which-Must-Not-Be-Named.   Every member of our family was a hot mess; Haley, 5 weeks old, a textbook example of a colicky infant, emitted a type of banshee wailing that could literally wake the dead, and was silenced only when nursing (constantly) or sleeping (rarely).  Sydney, 4 years old, with modulating sensory integration issues, experienced overstimulation, auditorily and otherwise. She was confused and jealous.  Her ‘elopement’ was at an all-time high and, thanks to a very ambitious preschool teacher, potty training had begun in earnest (it took two years to fully train our sweetie and it wasn’t the potty that was so much the problem).  Let that image crystallize for a moment: Clingy, wailing infant on the boob and pooping-in-her-britches toddler on the run.

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Filed under Down syndrome, Family, Grandparents, Motherhood, Parenting, Self-Care, Siblings, Special Needs, Stress

Joined at the Strands

braid

Sister, you been on my mind.

Sister, we’re two of a kind.

Oh, sister, I’m keepin’ my eye on you.

‘Miss Celie’s Blues’ from TheColor Purple.

My little sister thinks I hung the moon.  Even though I tortured her when we were young—literally—to this day she affords me hero-worship of which I am entirely undeserving.  And when she’s in pain, I still find myself wanting to make everything better though she’s across the country and not in the next room.  2,000 miles separate us now and our visits are too few, too far between. The reunions are bittersweet.  Even still, after a few days together well-worn patterns resurface.  I can be controlling and bossy.  She tends towards flighty and irresponsible. But we have the same nose. And thighs.  We laugh at the same jokes.  We share memories of times both good and not so good.  When we’re together we are children again and neither time nor distance can alter that connection.  Sisters; the love/hate bond of this relationship is like no other, making it one of the most sustaining to span a lifetime.

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Filed under Babies, Childbirth, Down syndrome, Family, Parenting, Siblings, Sisterhood, Special Needs

Symphony in the Silence

tree notes moon

Simple, profound truths come in quiet moments.  They descend gently in the warmth of a setting sun.  For me, it’s an altered perception, a shift; when time stretches and slows, and epiphanies unfold in brilliant clarity.   My daughter, Sydney lives in those moments.

Life moves fast and some say time itself is speeding up.  The efficiency of our amazing technological advances allows for rapid, immediate digital interactions but rather than creating more space in our lives, it generates a frenetic, frenzied pace as we move faster and faster, trying to do more and more.  As a mom I’ve certainly succumbed to the pressure of technostress.  The conveniences intended to make my life easier actually increase the expectations I place on myself until I am perpetually, chronically, frantically busy.  I’m weary of hearing my own response to the question “How are you?” “So busy. Crazy busy! But great!”   And I mean it; I love my life, but too much doing, not enough being resulted in everything going out and not much coming back in.  Before I knew what had happened the joy I felt in living was shrouded by the responsibilities that living demanded.

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Filed under Down syndrome, Family, Motherhood, Parenting, Siblings, Sisterhood, Special Needs